I have had my jpouch for 23 years. I had a hysterectomy which turned into intestinal surgery as well 7 years ago. Here is my current problem: A stitch from the hysterectomy went through the wall of the vaginal cuff and now I have granular tissue that bleeds. The granular tissue has been cauterized several times and continues to grow. It gets pussy and cultures have come back with fecal bacteria. I have had a ct scan, mri scan and a barium test to rule out a fistula. The jpouch is right up against the area where the granular tissue is in the vagina which means the granular tissue can’t just be removed without a possible issue to the jpouch. My colorectal surgeon said he must watch from my inside when the tissue is removed to make sure my jpouch stays intact and I don’t have any issues with it. He said there’s a possibility I could end up with an ileostomy. That could be temporary. The chance of this being done laparoscopically is slim due to all the scar tissue inside me. I would probably be cut open. (Removal of tissue in vagina will be vaginal.) I know this situation can’t be ignored. I am worried about losing my jpouch and causing a bigger issue. What is it like with an ileostomy? Is daily life affected?
Karen
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