I was wondering if anyone has had surgery for a pouch prolapse? My surgeon diagnosed polapse or obstructed defication about a month ago. I'm only 2 months post takedown. He wanted to try physical therapy, biofeedback first. After two sessions my PT referred me back to him. All muscles are functioning right. I've tried changing my diet to incorporate more fruits and veggies like they recommended but this leads to almost impossible to pass stool. I'm not constipated at all either. The only way to pass stool without extreme discomfort is by keeping it as close to water as possible. Which is not always easy. Anyway it started out that just my rectal cuff would come out, now part Of my pouch is prolapsing. On top of that I feel extreme vaginal pressure and my cervix is quite a bit lower. Finally I have a lot of pain when urinating and find it impossible to completely empty my bladder, the only way I can is by pushing really hard and even then it doesn't seem empty. How bad does it get before surgery is necessary? Is surgery helpful? Can continuos straining cause things to get worse? I feel like things are getting worse.
Replies sorted oldest to newest
I'm sorry that you are struggling with this. Apparently it is not an uncommon problem. I too have the same prolapse issue and was just released from Cleveland Clinic with a defication problem however I call it a blockage they call it constipation. The pain was horrible and I was there to do biofeedback and therapy while there they gave me a script for belladonna/opium suppository which I think made things motility wise worse. The doctors tell me that due to my pouch being so enlarged now and twisted and angulated and prolapsed the only alternative other than to do nothing and grin and bare it is ileostomy surgery. In order to properly evacuate the pouch I suggest catheterizing and flushing which is not an easy thing to do alone. My Mom helps but I am in a conondrum as well. Biofeedback did help somewhat but due to our prolapse depending on severity you may want to explore repair of prolapse. Talk to your surgeon and ask him if you are a candidate for pouchpexy or bio mesh? Keep me posted. I'm due for ileostomy and excision of jpouch February 28th..God I hope I've made the right decision. They say that it will give me a better quality of life but sometimes I'm not so sure. Best of Luck. Remember you're not alone
tana can they not redo your jpouch?
So sorry to hear you are experiencing this. I know from experience what you are dealing with and it is not only painful but wears on ones nerves. Also keeps me confined to the bathroom anywhere from 10mins. to 45 mins. When I tell someone I am going to the bathroom to stop a movie/going somewhere (just a couple of examples) I say I do not know how long I will be b/c I never know till I go what issues I might have. I searched this site and doctors help. About 4yrs. ago while in bathroom I prayed out to God that something had to give. I could not deal with the issue and was not getting any answers. Also had pain in upper right corner of outlet where stool rubs b/c that is where it comes out only when certain consistency. I have a pretty high tolerance to pain but this particular area is one I am not good at dealing with. Not sure how long after my prayer but got REALLY sick. Throwing up. Others were dealing w/stomach virus so thought it was my problem. Everybody else got over it but not me. I want to hopefully give you some info to help but at the same time trying not to be so wordy. Not doing so good myself right now and dealing w/an itchy/painful rash that I have not been able to get an answer to. Right now I feel like someone poured hot scaulding water on different parts of my body. 1st told shingles but now it is covering too much area for that. ANYWAY! First/second hospital I went to didn't have a clue what they were doing and I continued to suffer. Final doctor said that to me/family so not just my thought. Bowel obstruction that ended up correcting itself so doctor didn't want to do surgery until I got a little healthier. month later had surgery for scar tissue he felt caused J-pouch prolapse. Without looking for surgery notes/can not do that right now I will explain best I can. Part of my bowel was wrapped around part of my female parts. Pouch was somewhat (not sure words used to describe issue)tacked back up. Told if that did not wk he would either redo J-pouch or make S pouch. Sorry I still do not know if he was right. At times I still have issue. Told him/he shrugged his shoulders. 2yrs. ago went to another surgeon (Jax. Mayo Clinic) told several things. Ulcer right inside opening/outlet (cuffitis) pelvic floor issues. said wanted me off pain meds. b/c it can make it worse. drink at least 6 glasses of water a day. eat 6 small meals. went to pelvic floor sessions and did the other. all day I was peeing/pooping. Also told me to drink bulk drink (not sure which one) b/c if stool was soft but had more consistency it would come out easier. prescribed canasa. ANYWAY I am pretty much back to square one a long with the breakout issue. Not sure I have helped in anyway but at least you will know I can relate to what you are experiencing and I believe J-pouchers experience different issues/all difficult but it is good to hear from someone that actually knows what you are talking to b/c they have not just heard about it but actually experienced. I will be praying for you! Hope you get some relief/answers. I do know a man that says doing this has changed his life. He uses something hooked up to his toilet when home but when away uses something else to clean him out often each day. Would be difficult for me to do with the area being so painful.
Add Reply
Sign In To Reply
52 online (1 member
/
51 guests)