Laurie-

Those concerns that were expressed to you are very legitimate. I had the same consultation regarding surgical removal of  a skin tag very near the anal sphincter. If a hemorrhoid or skin tag is near the anal spincter, surgery could further weaken the muscles and render you incontinent. It is all based on the proximity to the sphincter because if it’s further weakened the risk of incontinence is significant. I was told to leave it alone especially since it’s not causing me any pain. For your issue I would certainly look at exhausting all nonsurgical treatments. If surgery becomes necessary use a surgeon experienced at these surgeries and preferably one with experience with J Pouch patients.

Thanks for your quick reply CTBarrister.

I don't know what else I can try! 

My surgeon said that I should search online for a surgeon at a private clinic.  That's why I think MAYBE someone could help me. 

I just wondered if anyone else was dealing with the same problem.

There are other treatments that might be safer than surgery. Have you consulted a gastroenterologist? I don’t know if sclerotherapy would be a good choice, but it’s worth asking.

Scott,

Thanks for your suggestion. I did discuss that with my doctor after the scope. He doesn't do that procedure. He asked various other doctors at the conference ( one happened to be the Proctologist that created my pouch) what could be done and they all agreed there's too much risk because of where it's located.

I have researched Sclerotherapy and what I keep reading is that it's not done on stage 3 hemerroids only on stage 1 & 2 because they are NOT in the nerve sensitive area.

It's not sounding too promising. I will keep searching though.

Thanks again for your reply.

Laurie