Surgeons

in 2008 I had Dr Kalady at Cleveland Clinic. Got bad infection,almost died and had many complications and structural issues with jpouch over the next several years. In October of 2015 had my pouch redone by Dr Remzi at Cleveland Clinic and so far all has been pretty good. Minor issues here and there and needed an incisional hernia repaired at the ileostomy site a few months ago.

August 2016, Yale New Haven, Dr. Reddy, so far very good results, fingers crossed!  No complications, only 3-4 bm's in 24 hours.  Excellent surgeon and very good bedside manner!

Dr Najjai Mahmoud at The  hospital of the university of Pennsylvania ... January of 2016 so it's been a year. I hated my ostomy bag!!!! I think each day gets better with my Jpouch. I had my first biut with Pouchitis. Been on just Cipro and I feel great. Would I rather have a colon with NO ISSUES.... of course but god doesn't give us everything. I'm functioning although pretty tired. I think that has to do with diet so I need to change that. I am very thin... 97-100 lbs. usually around 98lbs. 

Go to bathroom between 6-10 times a day. But usually around 8. Doesn't take long. 

When I had the temporary ileostomy I practically lived in bathroom. 

Life is Good �� 

Dr. James Church, Cleveland Clinic, sixteen years ago.  Two stage procedure.  Pouch exam about every three years.  No problems, very satisfied.

Dr George Block University of Chicago back in 1985. He is no longer with us, but did a fantastic job as I have had a great results over the years.

My surgeon was Dr. James Klas at St. Luke's Medical Center in Milwaukee, WI. He was fabulous! I don't blame any of my current issues on my surgeon, only on my diet.

Children's Mercy in Kansas City Missouri, Dr. Saint Peter. He moved very quickly through the three surgeries and did a great job. I recommend him for pediatrics! 

Dr Safar at Johns Hopkins in Baltimore Maryland great staff too!

For those in midwestern America: Dr. Berglund in Bismarck, ND.

http://www.sanfordhealth.org/f...tor/douglas-berglund

He's performed the surgery hundreds of times. Nursing staff at the hospital are excellent. The doctor's nurses only have praise.

Pouchomarx posted:

in 2008 I had Dr Kalady at Cleveland Clinic. Got bad infection,almost died and had many complications and structural issues with jpouch over the next several years. In October of 2015 had my pouch redone by Dr Remzi at Cleveland Clinic and so far all has been pretty good. Minor issues here and there and needed an incisional hernia repaired at the ileostomy site a few months ago.

My j-pouch was done by Dr Kiran at Cleveland Clinic in 2012. I too developed an incisional hernia at ileostomy site one year after surgery. I would love to have it repaired. And the surgeons seemed willing to do that at some point. But when I saw Dr Bo Shen, he told me that we need to avoid hernia repair at all cost due to the high risk of damaging the pouch. Have you had any complications from your hernia surgery. And can you tell me what doctor did your hernia repair?

I used Dr. Jeffrey Milsom from Weill Cornell Medicine in NYC. I have a lot to say about him and ONLY positive!

I had my first surgery with a general surgeon  as it was a life threatening emergency (perforated colon) then when I had time to do research for the next 2 surgeries I was highly recommended to Dr Milsom.

He is the chief of colon and rectal surgery in Weill Cornell. 

His bedside manner is amazing!!!! He is very very kind and treats you with respect. as far as the j pouch it is over 3 years and I can say I forget I  once had colitis, no medication, no complications since! Thank g-d!

Good Luck.

Surgeon - David Chessin (Cool guy, nice guy)

Hospital - Mount Sinai (New York City)

My scars are fine, they don't look grotesque. My bowel movements in the day are manageable. But at night they can keep me awake at times and cause me to have poor sleep.

Its been 5 years now since the surgeries and I haven't got any pouchitis or hospital stays. I just get less sleep. But besides the sleep, my life is much better now with the removal of my colon.

Good luck everyone! And may you have more good days than bad ones!!!

2010  Dr. Martha Ferguson  Christ Hospital and UC Hospital, both in Cincinnati, Ohio.  Nothing but the highest praise for her and her associates, no major issues since.

Original suregry Dr. Greenstein @ Sinai in NY.  Pouch advancement Dr. Sonoda @ NY Presbyterian.

Original surgery Dr. Greenstein @ Sinai in NY.  Pouch advancement Dr. Sonoda @ NY Presbyterian.

Eric J. Fonkalsrud, one of the pioneers of the pouch, ileo-anal pull through. He was cheif pediatric surgeon at UCLA in Los Angeles. I had not one complication and have not since my 1989 surgeries, thank You, God.

Amazes me how I could have such a life altering disease just pulled right out of me followed by 26 years of life without UC.

joan

Total colectomy with one stage Jpouch 1991 Mayo clinic

 by Dr. Wolfe!!!!   Wonderful life, can't get colon cancer if you don't have a colon!!!