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I have had my j-pouch for 23 years with very few problems. Now, however, things are changing. I am having difficulty passing stool. I am thinking I may have a partial blockage, some kind of obstruction, or something not allowing things to pass like they used to. I have had no real follow-up in all these years, and my one surgeon has retired and the other moved away.

I think I probably need to be checked, but am not even sure what that involves.

How do I locate a doctor that will understand the issues involved  - someone with some experience with j-pouch?  Thanks for any suggestions or advice.

 

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So, maybe my question should be, then, any recommendations for gastroenterologists in Topeka or even Kansas City? I saw a GI about 15 mos. ago and he seemed relatively unfamiliar with J-pouches. Didn't want to even examine me. Now that things are getting more challenging, I want to make a contact before I am faced with a major crisis, but I want someone that knows what he/she is doing.

When I lived in Kansas City my gastroenterologist was Gregory Barber. I owe him a great deal. After several surgeons had turned me down for a J-pouch, and I'd kind of given up, he encouraged me to explore further, and I'm *very* glad I did. I left Kansas City shortly thereafter, so I don't have much direct experience with his skills at J-pouch care (e.g. pouchoscopy), I'd trust him to be honest about it. Heck, my current GI has learned along with me, and could be trusted to do so.

This is my first post although I have been reading and commiserating for over a year. When  you asked about a central KS physician, I felt I needed to reply. My surgeon, Michael Porter, in Wichita was able to help with recurring stenosis of my cuff. In an outpatient dilation procedure, he was able to increase the outflow from "silly string" to a more normal stool. (Sorry about that visual). Anyway, I am 10 years out with no problems except the stenosis and a few bouts of pouchitis. Perhaps he can help.

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