Skip to main content

I have been battling pouchitis for a couple of months.  I am already on Cimzia and prednisone (for psoriatic arthritis).  I've tried two different antibiotics, xifixan (which made me much much worse) and Cipro.   I've also tried cortifoam without any relief.  What has worked for others when dealing with such stubborn pouchitis?

Also, does anyone else also have an eosinophilic disorder?  Aside from ulcerative colitis, I also have eosinophilic esophagitis and gastritis and am wondering if my pouchitis is possibly due to eosinophilic infiltration. 

Tags: pouchitis

Replies sorted oldest to newest

interesting thing happened to me. my dr. went to a conference about pouchitis. he was told that I could not have pouchitis because I had fap--he continued to say that yes,indeed, I did have it-now I think that part may have cleared up but I think I have another infection in another place--gotta find the appropriate drugs for that

palm55152

I didn't tolerate my one try with Cipro. but Flagyl or more accurately the generic, Metronidazole works very well for me. Usually within a day of taking first pill symptoms subside. Lately I have been battling a new form for me, ishemic pouchitis from marathon training and have yet to fully kick it. Used Xifaxan in November and it helped initially but then seemed to lose efficacy for me at the end of the 2 week course.

unfortunately have no insight on the eosinophilic disorder.

deweyj
Scott F posted:

Some other things to try are 1) a *very* low carb diet, and 2) VSL #3 DS in substantial doses.

Also: have you been tested for C. Diff?

Good luck!


 

Agree with Scott's comments (low carb and VSL#3). I would add trying:

- no sugar

- no gluten or grains (I even stopped gluten free grains and have better results then)

- no dairy

- no alcohol

and see if things improve. If they do, then you need to figure out which of those was causing the biggest problems one by one.

DJ H

Add Reply

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×