I was curious how many people have every had, or heard of IBD patients having a stroke? After one of my ER visits, I started developing superficial thrombophlebitis. After my 6th surgery on Dec 17th, I developed two DVTs. On Mar 20th I had a stroke. Apparently this is a known complication, but I never knew that. Just wanted to know if anyone else has heard of it?
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Good Grief! I have never heard of that. That must have been frightening.
Sue
Sue
Well, clotting disorders are associated with UC, so it stands to reason that strokes are an increased risk if you ave clots. I had deep vein thrombosis (DVT) following my surgery, but no stroke.
Jan
Jan
I work in a stroke center, and they are rampantly getting more frequent and hitting younger and younger populations. While I'm sure UC and the like can contribute to stroke issues, my guess is that there are other more common issues that are pushing people to have higher risks for stroke (smoking, diabetes, hypertension, etc.) than the IBD.
But there are elevated risks for IBD patients by a small margin (think normal people 5/1,000... IBD pushes it to 8-9/1,000, or something like that).
I'm guessing if you have other precipitating risk factors (IBD and hypertension, or IBD and diabetes and hypertension), you probably increase your risk as well.
But there are elevated risks for IBD patients by a small margin (think normal people 5/1,000... IBD pushes it to 8-9/1,000, or something like that).
I'm guessing if you have other precipitating risk factors (IBD and hypertension, or IBD and diabetes and hypertension), you probably increase your risk as well.
Thanks for the information. I'm 31 years old, and very active. I had the flu the week before, was in the gym doing a chest workout and thought I tore the connective tissue in my upper left ribcage. I was dehydrated from the flu, and was taking creatine at the time. Working out may not have been the best idea? Apparently the pain was the clot moving, I could feel it while running too. Anyways, stroke. No smoking, mild alcohol, and eating salad and fruit every day. Just wanted people to know that it's a risk that is real, and to be aware of the signs and symptoms. The chest pain, daylong headache that just wouldn't go away (with Tylenol, hydration, eating correctly, drinking caffeine) all would have been a little more urgent if I knew that there was a risk of stroke (plus my clotting issues).
Sounds like yours started with a pulmonary embolism. Several folks here have had that. Serious stuff and deadly too.
Hope you are doing OK now. I am surprised that your doctors did not warn you of the risks of pulmonary embolism and stroke after your issues with thrombophlebitis.
Jan
Hope you are doing OK now. I am surprised that your doctors did not warn you of the risks of pulmonary embolism and stroke after your issues with thrombophlebitis.
Jan
Yeah, I'm surprised with that, too, that it wasn't given as a warning. That increases the risk of stroke for sure.
I just learned something new and I'm not so sure I'm glad I did! So.....is there anything we can do to prevent strokes? My father had a series of them. The final one killed him. I have diabetes, hypertension and IBD! Also, on medication for the first two and no longer take medication for IBD now that I have a J-pouch! Also take a baby aspirin a day. I don't eat meat very often. If I do it is chicken or fish. I do like eggs. Hmmmmm!
Just curious what your pain felt like in your side and how long it lasted. How did you know you were having a stroke. Can you give more detail?
Basically, if you have risk factors, you need to deal with them: keep your blood pressure, blood sugar, and serum lipids under control.
Here's a link for info on prevention and symptoms:
http://www.stroke.org/site/Pag...ver?pagename=prevent
Jan
Here's a link for info on prevention and symptoms:
http://www.stroke.org/site/Pag...ver?pagename=prevent
Jan
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