Yes yes and yes

I have been lucky and only had one bad case of it where I was literally hemorrhaging when I released myself. It lasted about 12 hours and went away. I did have a scope done and they said they believed it was pouchitis. I have had issues where I get pains when I have to go and believe that's what's acting up. I have suppositories I can take which help and it goes away. 

Thanks for your replies😊

I know... Not think.... Stress has alot to do with flare ups I have personally.  Never had pouchitis. 
But I see a correlation with my problems and stress.
Richard.

Stress is associated with Irritable Bowel Syndrome (IBS), which many of us have at the same time as Inflammatory Bowel Disease (IBD). IBS can make people pretty miserable, so for some that may be the connection.

Stress can cause pretty much anything to go awry...our guts are very sensitive to stress (the fight or flight reflex which is stimulated by adrenalins causes animals (and people) to empty their bowels before the attack or the escape...it is just nature) so yes, your bowels turning to water when you are upset, cramping, gas, burping, gurgling etc are all stress reactions (among others)

Sharon

Absolutely!  I am a law enforcement officer. I find when I go on on vacation, I start feeling well, and my chronic pouchitis calms down.  First day back to work and it starts all over again. Interestingly,on a day to day basis, when I encounter situations that require multiple hours of focus, I function very well. When my mind is busy, it is as if my mind unconsciously tells my pouch to behave.  

Thanks I find the same happens to me. When I stay home from work I am more focused on myself and have increased frequency. When I'm not feeling well and  I tough it out and go to work (I am a therapist) I go much less as I need to tend to others needs and forget about myself.
I regards to my original post I'm not sure if I actually have pouchitis. I seem to be feeling better slowly... Less frequency, fatigue is slowly improving.  Called GI last Friday and was given script for flagyl  and option for endoscopy. My GI is 4 hours away she felt I should just start antibiotic but was okay with me waiting to see if I improved without it. I'm hoping that is the case. Worry about becoming antibiotic dependent��

I did a post recently that when I went to Japan and spent a lot of time in their serene gardens my pouchitis was much better, I was shocked this had never happened to me before.  I was home 3 days and then went to Yellowstone and spent time admiring the incredible beauty there and again my pouchitis improved.  I must admit on both occasions

i was drink quite a bit a wine every night also.  So I bought a big screen TV for my office and ordered some Japanese garden videos with meditation music.  When I get it all installed I will let you know how it goes.  I have tried meditation before to no avail but am a crazy type A.

There is IPS which is the same thing as IBS. I had IBS with my UC and had IPS before I had pouchitis. So if you had it before surgery you probably have it now.  Interestingly the treatment for it is antibiotics. So what your GI is proposing makes sense. We don't need a scope every time something like this happens. The doctors can treat accordingly to our symptoms.  

 

I use to worry about overdoing antibiotics. I ended up needing them all the time for chronic pouchitis. I rotated 2 different kinds every two weeks. The dose given to us is not as strong as they prescribe for different health issues. For example I was prescribed triple the strength of Augmenting for a UTI than for pouchitis.

 

Stress is the culprit we all need to deal with. Some more so than others. 

I am new to this group but not new to the j pouch. I had colon ca at the age of 40. I am now 70 and fighting this pouchitis thing. do any of you know of a prescription that will alleviate  chronic itch and burning of the rectal area?? I am on  a strong dose of flagel

 

I just use lots of zinc cream. Balmex adult cream works best for me.