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I am s/p J-pouch surgery for UC 3/14 with take down 6/14.  (1yr 5m) Until recently I have been adjusting well with slow improvements. Generally feeling well.   Last week I started having increased severe diarrhea accompanied by nausea and upset stomach.  I was loosing about a pound a day.  Thought I must have caught a stomach bug as a few of my co workers had been out with stomach complaints -assumed it just hit me harder.  In the last few days I am able to eat more, weight loss has stopped but increased frequency and rectal spasms continues.  Saw my family doctor who is checking labs but started wondering if this could be pouchitis - plan to call my GI doc today.  

In retrospec I have been under increased stress for the past month-feeling very over whelmed and wondered if anyone else has found a link with stress and onset of pouchitis?

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I have been lucky and only had one bad case of it where I was literally hemorrhaging when I released myself. It lasted about 12 hours and went away. I did have a scope done and they said they believed it was pouchitis. I have had issues where I get pains when I have to go and believe that's what's acting up. I have suppositories I can take which help and it goes away. 

Stress can cause pretty much anything to go awry...our guts are very sensitive to stress (the fight or flight reflex which is stimulated by adrenalins causes animals (and people) to empty their bowels before the attack or the escape...it is just nature) so yes, your bowels turning to water when you are upset, cramping, gas, burping, gurgling etc are all stress reactions (among others)

Sharon

Absolutely!  I am a law enforcement officer. I find when I go on on vacation, I start feeling well, and my chronic pouchitis calms down.  First day back to work and it starts all over again. Interestingly,on a day to day basis, when I encounter situations that require multiple hours of focus, I function very well. When my mind is busy, it is as if my mind unconsciously tells my pouch to behave.  

Thanks I find the same happens to me. When I stay home from work I am more focused on myself and have increased frequency. When I'm not feeling well and  I tough it out and go to work (I am a therapist) I go much less as I need to tend to others needs and forget about myself.
I regards to my original post I'm not sure if I actually have pouchitis. I seem to be feeling better slowly... Less frequency, fatigue is slowly improving.  Called GI last Friday and was given script for flagyl  and option for endoscopy. My GI is 4 hours away she felt I should just start antibiotic but was okay with me waiting to see if I improved without it. I'm hoping that is the case. Worry about becoming antibiotic dependent��

I did a post recently that when I went to Japan and spent a lot of time in their serene gardens my pouchitis was much better, I was shocked this had never happened to me before.  I was home 3 days and then went to Yellowstone and spent time admiring the incredible beauty there and again my pouchitis improved.  I must admit on both occasions

i was drink quite a bit a wine every night also.  So I bought a big screen TV for my office and ordered some Japanese garden videos with meditation music.  When I get it all installed I will let you know how it goes.  I have tried meditation before to no avail but am a crazy type A.

There is IPS which is the same thing as IBS. I had IBS with my UC and had IPS before I had pouchitis. So if you had it before surgery you probably have it now.  Interestingly the treatment for it is antibiotics. So what your GI is proposing makes sense. We don't need a scope every time something like this happens. The doctors can treat accordingly to our symptoms.  

 

I use to worry about overdoing antibiotics. I ended up needing them all the time for chronic pouchitis. I rotated 2 different kinds every two weeks. The dose given to us is not as strong as they prescribe for different health issues. For example I was prescribed triple the strength of Augmenting for a UTI than for pouchitis.

 

Stress is the culprit we all need to deal with. Some more so than others. 

Last edited by TE Marie

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