Hello, Friends. I had my takedown a week ago, home from the hospital 2 days now (pause for celebration: yay!... Then onto my struggle.) I've seen a lot in the forums about going up to 20x/day in the beginning. Can anyone share more specifics about how they managed that?
I stayed in the hospital a day longer because they didn't want to send me home going 27 times the day before while taking 8 Imodium/day. I started lomotil, and that quieted my gut down so I could finally sleep without pooping every hour. They sent me home with instructions to "work with the meds to figure it out for me." It seems like I just bounce from feeling pretty good and going less often and worrying that I'm taking too much because they are all small poops...so I'll back off the meds and get to watery in a few hours, then i'm back to way too many urgent trips.
It occurs to me that when people say "I was going 20x/day" is that every day? And for how many days before it started settling out? I know true settling out is months away, but what did it look like in between for you?
Lastly, if anyone else with pouch is high output like me, I would really appreciate if you would pm me if you don't mind sharing details to help get me through this initial hurdle.
Thanks... Kelley