I have had a j-pouch for UC for 7 years with many flare ups. Oral meds other than prednisone have been ineffective. I have been on Entvio for 1-1/2 years with minimal improvement. GI MD recommends starting Stelara. Has anyone had any exposure to this drug?
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I started it 5 weeks ago. I may have noticed improvement? I can't fully tell. They said possible improvement as early as 1 month but best improvement after 3-6 months. It is self-injected every 8 weeks but the first dose was via infusion at the hospital. It was FDA-approved like 5 months ago.
I started Stelara end of November 2016 with a hospital infusion. I then self injected at home in January & March. I saw minimal improvement in March. Hoping the May injection will be dramatic improvement.
Like you, I tried Entyvio & had no luck. I also had no luck with Remicade, Humira, and Cimzia. I am taking methotrexate with the Stelara to help with antibodies.
Cipro works but I am hoping Stelara can allow me to get off antibiotics so I can rebuild my gut microbiome.
JT,
so you've been Stelara 4 months with no improvement?
Correct, nothing significant yet!
