Hi, I've had my K pouch since 1982 and have only had one scope done about 11 years ago. I was having occasional problems removing the catheter, but no pain. The scope showed a small bump that had formed close to the end of the stoma, but really no serious issues. In the past month, I have started to feel some soreness when removing my catheter and am trying to get another scope scheduled, but I have to see a new dr and it could take until next month before I can get anything scheduled. (I'm on the wait list for office appt cancellations.) Has anyone had this happen, and if so, what is it? I have a feeling it has to do with the bump, but I did not have any soreness when I had issues way back then. I'm concerned it will get worse before I can get a scope scheduled. Is there anything I can do in the meantime? Thank you.
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Check your catheter for rough edges, particularly in the ports. Do you have the same problem with a new catheter?
Have you tried using olive oil instead of lube? It works well for me...I have granulation all over the edges of the stoma and they bleed a lot whenever I intubate (I usually burn them with silver nitrate sticks 2-4xs/yr)...the lube is fine but the olive oil seems to allow the tube to glide without hurting them.
I agree with Bill, try a new tube (strait instead of curved or vis-a-versa)...intubation should not be painful!
Sharon
I agree with Bill, try a new tube (strait instead of curved or vis-a-versa)...intubation should not be painful!
Sharon
My stoma always hurts when I pull my catheter out, mainly the last 1/3 inch before being out. Feels like a nerve though so I think it is that since I don't see anything or feel anything if I have my finger in there. Scopes show nothing either.
Thank you to all for your suggestions. I will give the new catheter a try--and also the suggestion for the olive oil. Sometimes I notice resistance when removing the catheter when there is something stuck in the holes at the end of the catheter--I don't recall having that issue before. Otherwise I don't have any other problems, so I'll ask if a scope is necessary. I did get photos from the scope and that showed the location of the bump way back when. Thanks again.
Linda....I have had my KP since 1981 and I never had a scope until 2008.
It found is that I have a stricture (constriction) at the base of the valve. It can cause my cath to pinch and get "hooked" when trying to pull it out. I have to breath and wait a bit to then gently pull it out.
I don't know where you are located but I have a great GI dr (Dr Abousaif) who can scope KPs.
And, we have 3 continent ostomy surgeons in So CA.
Did you already go in? Any update?
It found is that I have a stricture (constriction) at the base of the valve. It can cause my cath to pinch and get "hooked" when trying to pull it out. I have to breath and wait a bit to then gently pull it out.
I don't know where you are located but I have a great GI dr (Dr Abousaif) who can scope KPs.
And, we have 3 continent ostomy surgeons in So CA.
Did you already go in? Any update?