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Hi Sharon, you are so knowledgeable on this k-pouch site, I would like to just say thank you for helping so many people out and I too have a question I was hoping you had a answer to. Sometimes around my stoma, more so at the bottom, i'll get real sore, it real red and feels like a burn. Is there something that you know of that might be causing this. I'm taking the same meds nothing on those lines have changed, I pretty much eat the same things, and like I said its not all the time just once in awhile. Also what do you recommend putting on it, thank you so much for your reply! grandma64
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Hi Grandma, (you don't look 64!)
Thanks so much....as for the stoma redness/pain...I find that it is related to 3 possible things...1: a dietary change such as adding irritants ie. hot pepper sauce etc to your food (even if you are used to it...it can sometimes effect you), 2: sugar burn, when I eat too much refined sugar (and I do that a lot) it can cause a more acidy output (so can prune juice and other juices), 3: stomach acids due to liquidy output (usually if you have coffee on an empty stomach)...I also find that if I don't have time to change my patch for a while and it gets damp then I get a form of bumpy diaper rash...in my case it usually goes away within 24hr if I keep it dry and clean...if you can't wash it regularly then use a babywipe and dry it off well before covering it with a very absorbant cover (I use a cut up minipad stuck to my undergarment and a folded up kleenex against the skin (I like the mini packets, they are the perfect size when folded in 2)...the enemy of your stoma is dampness...so the mini kleenex is really absorbant, cheap and easy to find and buy, plus the 1/2 mini pad soaks up any excess moisture but be ware, if you are really damp or leak a lot of mucous (I do if I have to intubate often or remove the tube repeatedly to clear it of particles & pieces) then the cut end of the minipad can overflow its granular stuffing (the stuff that absorbs all the moisture) and that is very, very irritating for your skin.
As for any other irritation that refused to go away after 24hrs...hydracourt 1% cream or pomade...use it sparingly but renew after every intubation and just before bedtime.
Hope that this helps you somewhat...I have tried both aloe and vit e creams but they just don't cut it.
Sharon
Hi Sharon, thanks for your quick reply, and thanks for saying I don't look 64, because I was born in 1964 not 64, LOL!!! Well anyways, what you said in your reply makes a lot of sense, I do sometimes drink tea on an empty stomach and I also crave sugar on occasion (candy), I know it's not good for me, but sometimes I can't help myself, haha! Also I seem to have a high output of mucus more often than not. On what to put on it, do you mean hydrocortisone cream? And what is pomade? Thanks! grandma64

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