Soical Security Disablity

Yes, I know someone who was approved for SSI.  It can be a difficult process and many times is not approved the first time around.  I 'm not sure what exactly qualifies you for Social Security Disability.  You might want to check out their website.

Yes, I got it last year. Took me 2-1/2yrs to get approved. Best bet is to see a lawyer first. 

The key to getting Social Security Disability is a well written doctor’s report that documents that your disability prevents you from engaging in gainful employment for an extended period of time.  Medicare kicks in only after you have been on disability for two years.  I worked 27 years with a suboptimal j pouch and was able to do my job without any special accommodation by my employer.  Your situation could be different and may support going on disability.

I hate to say this. 

But. I am going to. 

Removal and having a permanent ileostomy is the cure to a failed j pouch. And they know it.  I know it's a cure. 

It's happened to me. I have no disability and no restrictions and take no meds. 

Getting ss is difficult in any situation.  This one will be especially difficult. 

My wife has no shoulder. Her arm just hangs. She couldn't get ss. I don't understand that. She is in tremendous pain. But they say she can work. The system is messed up. Some get it that don't need it. Some don't that definitely need it. So. It's a crap shoot. No pun intended. 

It's not an ending anyone wants.  And I know my statement may cause discomfort with some here.  

And I apologize now if it has. 

Richard. 

I do not mean to take the wind out of Richard’s sails since he made the choice that was best for him, and it worked out well.  There are two alternatives to an ileostomy that are also a “cure” to a failed j pouch: the Koch pouch and the similar BCIR.  These options do not require an external bag and most people with them have few or no restrictions on what they can do.  Anyone faced with possible removal of their j pouch should research all three options and make the selection of the one that they feel is best for them.

No wind taken. Lol. 

And yes.  It was the best decision for myself. No regrets whatsoever. 

You are right. This is not the best way to go for everyone.  Nobody  Including me wanted it to end this way.  I didn't want it.  But after coming to terms with it as you know it was my answer. My ending. Pun intended.  I never in my wildest dreams thought I would be ok with an end ileo.  Comparing this to what was happening while with a pouch is like night and day.  This so much easier. I'm fortunate.  I'm done and moved on. 

Any type of pouch would not have worked for me. 

Just the way it was. I did ask questions before doing so. I also had to consider my health. Which was deteriorating quickly and I had no time to see if another type of pouch would work.  I may not have had enough life in me left to make it. I was pretty well at the end of my rope. That also has to considered as it was in my situation. 

But I do agree with you. Look into all options if your health allows you to. 

I do not understand what you mean did you have a J Pouch?? I have that right now, did it 2014. I just have some food issues. Have to not eat for at least 7- 8 hours if I have to travel either by plane or by car. Now if I carry something a little bit heavy it triggers me to use the bathroom but if I and no eaten for at least 7- 8 hours I am fine. Doctors says that you can eat anything they are not right for me. I can not have fibers, milk it does not matter whether it is almond, soy or coconut milk, peanuts , apple juice and some others. My doctor told me to eat rice or food binding but that makes me constipated. I have to take milk or apple juice to induce it... I cannot work with this condition.It is hard to sleep in other places except a hotel , no relatives or friends because of this bathroom issues. I guess nobody would understand how it feels like to be in this kind of situation .

I just pray to God to help me which makes me go on each day keeping me strong...

Anyway, it made me think that you are almost in your end rope.  I can say please hang in there we are so much better compared to those who had other health problems.. Just stay positive and god knows what we have been through.

If you had some suggestions about my issue please let me know . Thank you so much. 

I was approved for SSDI but I have other health problems than contributed to my UC and then j-pouch.  There is a long application to fill out as well as one for your doctor.  I had to also see a doctor and psychologist that the social security administration selected.  I was approved the first application and I didn't have a lawyer.  I received benefits back to the last day I worked minus the 6 month waiting period.

That said you might want to hire an attorney that has experience in such matters. I called the local social security office and they sent me the paperwork.  It took me a long time to fill out.  

If you can't work you should apply and not wait too long.  When you apply include all of your health and mental problems.  If you are not approved you can appeal it.  My intentions were if I was not approved was to appeal.

My job duties acquire a lot of lifting physically and working in all conditions outside. and sometimes the job sites don't have any toilet resources. I live in remote community, which the only work around is factory, agriculture or construction. Of course, there are many jobs that have light duty or desk work, but I don't have that kind of skill or a degree, an the nearest city closest to me is hundreds of miles away.  and I don't know anyone in the city...  so who knows? lol. I just don't have the stamina anymore to keep doing what I do. Like everyone else, I have bills and property taxes to pay. Its not easy being a land owner and being sick and not being able to work like a modern day slave?  

good and very educational points you guys. I'm already looking into a lawyer and a doctor out of Indianapolis. 

Richard,

I know a few people like that who take advantage of the  system who receive disability - food stamps - state aid  - and collecting odds & ends from charity donations and guess what, they still work on the side. its crazy - stupid!  

That's the bad part. 

My whole working life I've had uc.

Only the last 20 years have been really bad. 

I counted and stopped at bathroom visits one night at 40.

That's just at work on a eight hour shift. Fortunately I had understanding management.

They knew I could still produce.  And let me work through it.   That's when I had a colon. It's gone now. I don't miss it one bit. 

Now as for my wife. She is like me. Just works through because she has to now at a menial job because the post office forced her into retirement after the surgeon butchered her shoulder. We had no recourse. None. 

Then SS denies her. Insult to severe injury. She has worked hard all her life. And now it  seems we are back where we started some 40 years ago when we were first married. 

We came in broke. Looks like we will go out broke. 

Not trying to push off a sob story.  It just happens. 

I'm not saying matrix doesn't deserve SS. I hope he gets it. And anyone else who really needs it.  Because if you don't. It can cause financial ruin. Or back to living paycheck to paycheck after all your health problems take the savings you had.

It's a tough life we have with these gut problems.  But the financial strains are not mentioned much here. But they come with the sickness.

Richard 

I don’t understand the system. Nearly everything I read says the first application is always denied, and almost everyone needs a SS benefits attorney to win an appeal. I have a friend that was homeless and couch surfing. She had multiple herniated discs, lupus, depression/anxiety, and migraines. She got an attorney. Her SSDI was finally granted for the migraines! That was her least debilitating diagnosis. She is far from flush now, but at least she has an apartment and is managing.

The system is so focused on people who cheat that the deserving are allowed to slip through huge cracks.

Jan

I think the conception that everyone is denied with their first application is incorrect.  I know several other people who were approved with their initial application.  I would encourage anyone that is not able to work now and in the future to apply.  Make sure you see all the specialists you should before applying.  The burden of proof is on the person applying.   

My story. 

I did apply for it myself. After my first 3 surgeries I had doubts I would work again. 

Well. Long story short. I did go back to work and six months after returning I get a phone call while at work saying I was approved. (in that time my wife was denied twice). Being who I am I told them the truth. I didn't have to and I could have gone back and got retro pay but didn't 

Jan. 

Your last paragraph pretty well sums it up. 

We are guilty before we even try.  And suspect to fraud.

Richard. 

I am on disability. It took months. Fill out all the paperwork and they usually deny your first request. My husband is very outgoing and type A personality. We kept calling them and my husband got the name of one of the judge's clerks. After talking to her personally she said this should have been approved a long time ago. She took it to her judge and had him sign it just like that. It's a lot of work to get it but as an RN I couldn't take care of 8 + patients and go to the bathroom urgently. I had other health problems also along with it and bad asthma I could not take the stress of being a nurse anymore. Just be persistent and include all your issues, meds, and everything it takes to live with a J Pouch and good luck to you. I am now retired but do not feel a bit bad about drawing SSI all the years before retirement. Don't hire an attorney is my advice. They can't do anything more to help than you can yourself. Don't give up and bless you. 

Hire an attorney, the only way to get approved, they do all the leg work

You get a very long application form and forms to go to all of your medical professionals.  It is important that your main doctor agrees that you are disabled.  If you want to see what the application looks like before going to a consultant call and ask the social security administration to send it to you.  

I moved from another State and I want to apply here where I am . Can I ask for a certificate from my doctor where from where I came from

This is a question that a lawyer or the social security administration would help you with. Attorney fees usually come out of the back benefits you recover.

Update: 5/16/18

So, UC is evaluated under the disability impairments listings for inflammatory bowel disease. since surgery, I do understand the short bowel syndrome that I have that does causes my to be weak & impaired. The problem here is, to qualify you have to have symptoms such as anemia, obstruction, fistulas or abdominal masses. I do have a case of anemia from weight loss.  As of now, I been trying to get a doctors referral - give it to my lawyer so I can build a case. This is not easy, its turning into a bit of a funny farm ride with the doctors who seem to just care about profits for themselves ... they don't understand I just simply cant do full-time employment and I don't have the skills or education to just 'GO GET ANOTHER JOB" look, I'm a bit off the grid here, I'm sure its easy for someone In the city to look for other employment that's under the table work, but not here where I'm at... lol. So, I guess its be continued. 

be well,

AL Matrix,

Do you have any other health problems?  For example is your fatigue like chronic fatigue or fibromyalgia.  You might want to look them up to see if you have those symptoms.  That's just an example.  The point is if you have other health problems, including mental health, you include them with the application and they should improve your chances. You need to have a doctor diagnose everything. Once we get an autoimmune disease others can follow too.