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Hi I have asked for and received great advice from some of you. I am going in for per-op tomorrow,surgery next week to see if I have a fistula.. I had an perianal abscess surgically drained in September.. It's never healed fills up drains on a cycle.. It's not painful a little sore but nothing even needing meds.. The lump when it fill has moved around a bit by that I mean different areas but around the exciting wound.i had a pelvic lower abdomen MRI it showed inflammation the cycle had started at time of exam but my doctor said that a fistula was not confirmed from MRI.. He wants to go in from the abscess and check for one put seton in if its there and if its not he said he will inject something which I forget exactly what? Since September I have been in to see him at least twice a month I have been put on Kelex and cipro a few times.. I have had a scope and blood work and everything was great no biopsy..MRI was a month ago and I have been feeling great abscess is still cycling but I'm kind of use it it now I take at least 3 to 4 baths a day and heating pad a lot.. We have planned a 3 week Italy vacation leaving mid July.. My question to anyone that can help is can I leave this until I come back is it a risk to my j pouch if I don't do the surgery he said it would be around an hour long and I go home same day should have no complications and recovery should. Be quick.. Will it be I know better not to totally believe in that.. Do some abscesses just not heal ever? If not treated will it progress and put my J pouch at risk? Please help me my family is great but no one gets this illness unless you are living with it):
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I would suppose, if it's not bothering you, you could wait. My cyclical fill then drain thing made me feel bad, and also hurt in that stinging way. So much worse than having the seton, for me, and I'm glad I have it.

I've had two setons placed now. This one currently has been in for 3 weeks now. While it's still not like having "nothing" there, it's been so much better than NOT having it there. The longer I have it, the less bothersome it is *and it never was very bothersome, honestly. I go most hours of the day forgetting it's even there.

My issues are no where near my J pouch. I suppose that if it was, it might be something that could be a bigger issue. My fistula is more of a mucus fistula, with the seton in. I've never had it discharge stool... occasionally there's a bit of blood. But my discharge is very scant. I either wear nothing, or I place a 2X2 gauze pad there, so I don't get irritated *and the longer the seton is in, the less drainage it is putting out. Without the seton, it would fill mostly with bloody mixed pus drainage, and it was never a ton, again, but it was painful to me when it would do it's thing.

My understanding is that these things don't just go away, unfortunately. All of our medical knowledge, too, and perianal fistulas are something that we've not been able to conquer easily, either. I also think that having a perianal fistula has a small increase on the risk of anal cancer, which is something I shall talk to my surgeon about, too, though it's not a huge increase, from what I've read, and may be more of an issue if NOT treated. Hell, my hubby is on Enbrel, and he has an increase of cancer with that... but you just can't live life worrying about that stuff, the "what ifs?"

From what I understand, too, is that antibiotics don't work on abscesses there. The abscess is too walled off, so antibiotics are a poor choice for treatment. I stay away from antibiotics unless absolutely necessary. I see too many patients at work with resistant strains of things related to overuse or overly prescribed antibiotics, and I surely don't want C diff.

And also, honestly, if it's just an EUA, and a look-see... well. If he *doesn't* find a fistula (and my surgeon almost couldn't find the "hole" inside the anal canal, as it was so small... but it was there, and confirmed by MRI), he won't be able to place a seton, and if he does, and it's just a rubber seton band that's a draining seton (make sure it's not a cutting one... while some surgeons use them, I hear they are painful, and I'm sure it WOULD impact your trip)... well, all I can say is what I've experienced. The seton took me about a week to feel mostly normal again with it in... not that it HURT, just that it was, you know, something new to deal with. It was definitely less bothersome and less painful than my cyclical bump.

I went in all worried about it, being a patient AND a nurse, asking question after question, and my surgeon, with his dry sense of humor, put his hands up and smiled and said, "We have already used too many words to talk about this... I'll see you in the OR!" and he was right, at least for me. Compared to all of the things I've gone through in my life, with UC, surgeries, even the abscess... the seton was nothing. If you have it done now, in early May, you have two months to get used to it, and that's probably 6 weeks more than necessary to feel at ease with it. Though, we're all different, of course! But this is just my experience with it.

I have no long term plan yet. I'm actually seeing my surgeon tomorrow, for another outlet dilation, which probably didn't have anything to do with my fistula. He's thinking about a year to live with the seton, then we will revisit options, I guess. I know they are out there (LIFT surgery, plugs, etc.), but he's not feeling the urge to do anything yet. Think he just wants everything there to just settle down.
Thanks Rachel.I know the logical side is to have this surgery and hope that no fistula is present.I am worried about timing and another surgery just plan old sucks!! he just said seton but I will be seeing him before surgery with my list of questions to. I don't believe my Jpouch is in danger.. My surgeon has not mentioned this at all would that be confirmed through MRI?What advice would you give me with travelling and not having access to a bath right away?
I carry Tucks or something similar, in case. Sometimes I just wet toilet paper, too, or paper towels, if I'm out of Tucks. With the seton, at home if there's time, I like to use my sitz bath, but I go to work and am there for 13-14 hours, and use a washcloth after going. On those days I just soak my butt in the a.m. And p.m., but I almost don't even have to now... But I feel better when I do. I can swipe with something wet and go through a couple midday bathrooming times, here at 3 weeks, and it's not too bad. I felt like I had to soak more with the fistula prior to the seton.

I suppose he'd have known via the MRI if your pouch was involved.
Hi I am scheduled for surgery on June 5th.. I went to talk to my surgeon today to ask him a few questions. He said he will check my j pouch and check for fistula a seton would be put in if found.. If the abscess has a deeper cavity he will open that up and pack it.. He said he would not cut around rectum to save muscles..I am nervous to what I'll wake up to! One good thing is I feel stronger and at a good place health wise besides this cycling abscess.I will be sent home right after that's a first to I usually stay for awhile..Any advice on after care?
Well, my abscess burst on its own, though the ED did do a cut on it, too, and wick packed it. THAT hurt way more than the seton placement. I didn't really have an intra-op procedure for it, just local anesthesia and a small slice in the ED. It took a bit of time to heal, because our poo isn't well formed, so it burned to go, and I just had to soak more in the beginning. I hated the abscess way more than the fistula!

Once it ended up established as a simple fistula, and I had the seton placed, THAT wasn't bad at all, just felt kind of violated from the searching he had to do to find its tract. It's been a month now, post seton, and I'm just fine, I don't notice it at all. I'm not even using Tucks anymore, really, and haven't needed a 2X2 for a about a week. Also, haven't done a sitz bath in about a week, too. I have almost zero drainage at this time... just the dangly little seton, hanging out there. I'll see my doctor in about another 3 weeks, as a f/u appointment, but I don't think he's going to change anything right now. Figure I got me a seton for at least a year...

After care... just have yourself a sitz bath and do them after BMs, and add Epsom salts. If they cut you, make sure to have a script for something for pain *that was when I needed it, when the abscess was cut... after the seton, I took *maybe* a few 1/2 pills of Norco or Vicodan, I'm a lightweight. Buy a box of 2X2 gauze pads, and use them up against the seton if it's draining... I was irritated at first, a bit, with the drainage, so a bit of your favorite bottom soother might help, too (people seem to love that Calmoseptine on this site, but I've never tried it. Wasn't around when I was a new J poucher.)

Good luck!
Thanks Rachel .. This lump is the biggest it's ever been a little sore not much in discharge.. I feel ok no other symptoms but am getting a little worried in the size of it!! Wednesday is surgery and I wanted to have a stress free weekend with my family..it's also very hard not soft.Do I just wait until Wednesday or go to the ER?
I'd say keep an eye on it... If you start to feel ill, or fevered, or the lump hurts very very badly, I'd go sooner, but if it's business as usual, I suppose you could wait OR call your doctor Monday morning to see what they suggest, if nothing changes over the weekend. My lump never got bigger than, say, nickel size, and then it burst and started its lovely fistula cycle, so mine was never very large, even though it was painful.

My drainage picked up a wee bit, after ending the antibiotics for the cat bite I had... Resorted to a sitz bath here and there again. It's not awful, but I do think the abx helped it. Yet I don't want to be on abx all the time, so I guess I'll live with sitz baths and 2X2 gauze pads.

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