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On Friday I ate a grapefruit, didn't pass it and then I made the mistake of having a bowl of veggies. I now have a partial obstruction. They have talked about doing an NG tube which I haven't done yet because I'm only puking twice a day from 16 times on Friday. I do keep burping up liquids though so maybe I should do it. Thoughts?



They are transferring me to another hospital that can do surgery if needed because I'm not passing much. I know my insides are a mess from adhesions and I'm very scared about we having surgery! My last surgery for reproductive issues was supposed to last 2 and 1/2 hours and it lasted 13 hours.



Is there another type of procedure they do besides automatically going in the abdomen? The hospital I'm at has only done an enema which resulted in nothing. I've also had miralax once a day while here.

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I'm so sorry to hear about what you're going through. It sounds incredibly painful and frustrating. Based on my own experience, I can understand your fear and hesitation regarding surgery. However, given your current symptoms and history of adhesions, it might be necessary to seriously consider the NG tube and possible surgical options.

Here's my story to give you some perspective:

One year post my total colectomy and j-pouch construction, I turned over in bed and felt something odd. I started experiencing obstruction discomfort and went to the hospital. My CT scans came back negative, so I was sent home, continuing to vomit. As my pain and symptoms did not resolve, I returned to the hospital, only to meet a horrible doctor who said I was making up my symptoms. Despite this, I was admitted because I had been there within 24 hours.

Fast forward, I continued to have imaging that showed no reasons for my symptoms. They placed an NG tube, and I had it in for so long there was an indent in the back of my throat. I repeatedly filled the NG canister, and because my imaging kept returning inconclusive, I sat in a hospital bed and suffered for a week before they decided to explore.

It turned out adhesions caused the obstruction they couldn't see, and my guts were dying. They cleaned out the adhesions and closed me up, but the doctor nicked my bowel while being in there. I woke up vomiting with a basketball-shaped abdomen, leading to peritonitis. After 35 days, I went home, but not before my kidneys tried to fail due to vancomycin.

I share this with you to emphasize the importance of advocating for yourself. I know you don't want surgery, but we already have such little guts left. Don't risk the death of those! I wish I had advocated for the surgery sooner because I almost lost my j-pouch and went through way more trauma than I needed to just because the imaging was hiding the diagnosis.

In your case, it's crucial to speak up and ensure your doctors understand your history and concerns. They might be able to explore less invasive options first, but be prepared for surgery if it's necessary to prevent further complications.

Stay strong, and remember you're not alone in this. Advocate for your health and well-being.

EP

OMG!!! I am sorry to hear that!!! Unfortunately with the J-pouch its trial and error. To avoid blockages and bowel obstructions in the future I recommend drinking water before, during, and after every meal, that helps keep me out of trouble.

Getting back to your current situation: I have done the NG tube before and its very hurtful!!! It feels like hell but it works. I think that is the first step and the next step if that does not work then its definitely the surgery unfortunately to my knowledge.

I would not recommend eating anything during this time.

How are you feeling now???

FM
@Erica P posted:

I'm so sorry to hear about what you're going through. It sounds incredibly painful and frustrating. Based on my own experience, I can understand your fear and hesitation regarding surgery. However, given your current symptoms and history of adhesions, it might be necessary to seriously consider the NG tube and possible surgical options.

Here's my story to give you some perspective:

One year post my total colectomy and j-pouch construction, I turned over in bed and felt something odd. I started experiencing obstruction discomfort and went to the hospital. My CT scans came back negative, so I was sent home, continuing to vomit. As my pain and symptoms did not resolve, I returned to the hospital, only to meet a horrible doctor who said I was making up my symptoms. Despite this, I was admitted because I had been there within 24 hours.

Fast forward, I continued to have imaging that showed no reasons for my symptoms. They placed an NG tube, and I had it in for so long there was an indent in the back of my throat. I repeatedly filled the NG canister, and because my imaging kept returning inconclusive, I sat in a hospital bed and suffered for a week before they decided to explore.

It turned out adhesions caused the obstruction they couldn't see, and my guts were dying. They cleaned out the adhesions and closed me up, but the doctor nicked my bowel while being in there. I woke up vomiting with a basketball-shaped abdomen, leading to peritonitis. After 35 days, I went home, but not before my kidneys tried to fail due to vancomycin.

I share this with you to emphasize the importance of advocating for yourself. I know you don't want surgery, but we already have such little guts left. Don't risk the death of those! I wish I had advocated for the surgery sooner because I almost lost my j-pouch and went through way more trauma than I needed to just because the imaging was hiding the diagnosis.

In your case, it's crucial to speak up and ensure your doctors understand your history and concerns. They might be able to explore less invasive options first, but be prepared for surgery if it's necessary to prevent further complications.

Stay strong, and remember you're not alone in this. Advocate for your health and well-being.

WTF??!!! The doctor said you were making it up?!?! That makes me super pissed off! I am sorry that happened to you, that is crazy!!! I am sorry. Thank God you used your voice and saved yourself. I did not know Adhesions can be hidden like that. Adhesions can cause so much trauma even with infertility too.

FM

That sounds awful. The NG is miserable, but it’s worth it; it will decompress the stomach and suck up all the fluid you’re making that you can’t pass yet. It buys time so that the gut further down can finally move along whatever is stuck. Partial small bowel obstructions (PSBO) are not life threatening, just miserable. When you’re vomiting, though, it can be a complete obstruction, and it’s better to let them do what they need to. Usually if you’re obstructed, the loops of bowel before the obstruction will be blown up like a balloon on abdominal x-rays (because everything is stuck up to that point and can’t pass). Sometimes that is harder to see; it’s easier when we don’t have a colon.

Without the NG, and with the obstruction, you have stomach acid and bile building up, and it adds to the pain and the misery. If you have really bad nausea and are still not passing gas or stool from below, might want to try it. It’s kind of miserable and annoying to have it put down, but the feeling of having all that muck drained from your stomach without having to vomit is a good one.

With a complete obstruction, the blockage can kill the bowel, like Erica experienced. When the bowel is unable to move food along, and it is building up like a dam on the inside, it can block blood flow from moving through the outer layers, as the bowel gets stretched. Then it tries to die in places, turns black if it gets that far. Then it can rupture, and that is deadly.

Like others on this site, I have been fairly traumatized by all that I have experienced in hospitals as a patient. But if they think you need to have surgery to lyse adhesions, they can sometimes do it via scope, and that’s easier on you. If things have gone too far, though, and the bowel is damaged by the obstruction, you would need open surgery.

I spent a year and a half with a leaking pouch that nobody could diagnose correctly (mostly for lack of effort). I had to beg for an MRI, which of course showed the problem clearly (rampant peritonitis from chronic pouch leak, causing my pain and diarrhea for so long). By the time it was found and I had a surgeon willing to treat me, my jejunum (middle part of small intestine) was encased badly in scar tissue. He didn’t know that when he did my diverting ileostomy, but he saw it while he was scoping, and ended up having to open and take out a huge block of small bowel that was in so much scar that he described it as ‘like concrete’.

It isn’t worth losing that small bowel. Let them do the surgery sooner rather than later, if they tell you it’s needed. I wish someone had figured out what was going on much sooner in my own case, when that much small intestine could have been saved. I’d probably still be able to work if that had been done.

Instead, I lost my work and my life changed for the worse in many ways. Sooner, the adhesions forming from the infection could have been released without removing more bowel, the infection itself treated, and the pouch repaired. Since it was so far out, though, from when it started, I ended up with a revision to an S-pouch (didn’t have enough slack left for a J), am missing a lot of important jejunum (where critical nutrients are absorbed), and have a much harder time/worse function than when I had the J-pouch. The revision further shortened my ileum, and the loss of length in the jejunum means much looser and more painful stools, and on top of it all, I had an injury to the nerves controlling the internal sphincter during the revision, so I can’t control it when I need to go. I don’t absorb minerals well, and the deficiencies are irritating and painful (I get muscle cramps easily from Mg deficiency, and skin problems from Zn deficiency, so I have to supplement those in high doses and hope they absorb). I don’t absorb enough of the medicine that I’m supposed to be on for my RA. It’s a lot harder to lose small bowel than colon, and still function well, in my experience!

Best of luck. I hope it all resolves soon with just the tube…

A
@athena posted:

That sounds awful. The NG is miserable, but it’s worth it; it will decompress the stomach and suck up all the fluid you’re making that you can’t pass yet. It buys time so that the gut further down can finally move along whatever is stuck. Partial small bowel obstructions (PSBO) are not life threatening, just miserable. When you’re vomiting, though, it can be a complete obstruction, and it’s better to let them do what they need to. Usually if you’re obstructed, the loops of bowel before the obstruction will be blown up like a balloon on abdominal x-rays (because everything is stuck up to that point and can’t pass). Sometimes that is harder to see; it’s easier when we don’t have a colon.

Without the NG, and with the obstruction, you have stomach acid and bile building up, and it adds to the pain and the misery. If you have really bad nausea and are still not passing gas or stool from below, might want to try it. It’s kind of miserable and annoying to have it put down, but the feeling of having all that muck drained from your stomach without having to vomit is a good one.

With a complete obstruction, the blockage can kill the bowel, like Erica experienced. When the bowel is unable to move food along, and it is building up like a dam on the inside, it can block blood flow from moving through the outer layers, as the bowel gets stretched. Then it tries to die in places, turns black if it gets that far. Then it can rupture, and that is deadly.

Like others on this site, I have been fairly traumatized by all that I have experienced in hospitals as a patient. But if they think you need to have surgery to lyse adhesions, they can sometimes do it via scope, and that’s easier on you. If things have gone too far, though, and the bowel is damaged by the obstruction, you would need open surgery.

I spent a year and a half with a leaking pouch that nobody could diagnose correctly (mostly for lack of effort). I had to beg for an MRI, which of course showed the problem clearly (rampant peritonitis from chronic pouch leak, causing my pain and diarrhea for so long). By the time it was found and I had a surgeon willing to treat me, my jejunum (middle part of small intestine) was encased badly in scar tissue. He didn’t know that when he did my diverting ileostomy, but he saw it while he was scoping, and ended up having to open and take out a huge block of small bowel that was in so much scar that he described it as ‘like concrete’.

It isn’t worth losing that small bowel. Let them do the surgery sooner rather than later, if they tell you it’s needed. I wish someone had figured out what was going on much sooner in my own case, when that much small intestine could have been saved. I’d probably still be able to work if that had been done.

Instead, I lost my work and my life changed for the worse in many ways. Sooner, the adhesions forming from the infection could have been released without removing more bowel, the infection itself treated, and the pouch repaired. Since it was so far out, though, from when it started, I ended up with a revision to an S-pouch (didn’t have enough slack left for a J), am missing a lot of important jejunum (where critical nutrients are absorbed), and have a much harder time/worse function than when I had the J-pouch. The revision further shortened my ileum, and the loss of length in the jejunum means much looser and more painful stools, and on top of it all, I had an injury to the nerves controlling the internal sphincter during the revision, so I can’t control it when I need to go. I don’t absorb minerals well, and the deficiencies are irritating and painful (I get muscle cramps easily from Mg deficiency, and skin problems from Zn deficiency, so I have to supplement those in high doses and hope they absorb). I don’t absorb enough of the medicine that I’m supposed to be on for my RA. It’s a lot harder to lose small bowel than colon, and still function well, in my experience!

Best of luck. I hope it all resolves soon with just the tube…

PERFECT!

FM

I had one obstruction a couple of years ago and it was hell.  I put it off thinking I was just having a few bad days in a row.  This was Labor Day weekend and I was eating all sorts of crap.  The last thing I ate was mac and cheese with about 40 different cheeses in there (seemed like it anyway) and I swear that is what finished me off.  I made it through Monday and Tuesday morning I was on my living room floor and a huge amount of pain. 

I went to the ER and they gave me an NG tube which fell out at least 5 times.   After the second I put it back in myself, the nurses could not believe it but it got easier each time LOL.

I was about 1-2 hours away from surgery on day 5 or 6 and finally I told them to give me one more shot and with 4-5 nurses surrounding me on the toilet I let it rip and rip and rip, I could have cared less if I was on national TV I was just happy I did not need surgery.



So don't give up, move around as much as you can, push on your gut, whateve it takes!



Best of luck!



Pete

PSJ
@PSJ posted:

I had one obstruction a couple of years ago and it was hell.  I put it off thinking I was just having a few bad days in a row.  This was Labor Day weekend and I was eating all sorts of crap.  The last thing I ate was mac and cheese with about 40 different cheeses in there (seemed like it anyway) and I swear that is what finished me off.  I made it through Monday and Tuesday morning I was on my living room floor and a huge amount of pain.

I went to the ER and they gave me an NG tube which fell out at least 5 times.   After the second I put it back in myself, the nurses could not believe it but it got easier each time LOL.

I was about 1-2 hours away from surgery on day 5 or 6 and finally I told them to give me one more shot and with 4-5 nurses surrounding me on the toilet I let it rip and rip and rip, I could have cared less if I was on national TV I was just happy I did not need surgery.



So don't give up, move around as much as you can, push on your gut, whateve it takes!



Best of luck!



Pete

Damn! Thank-you for sharing! And sorry that happened to you. That does sound like hell. Were you drinking a lot of water that day before the obstruction happened and during the meal??? And did you keep eating even after being full???

FM
Last edited by Former Member

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