My husband has a j-pouch, and has not had a good night's sleep since he got it (years ago). He has to get up at least 2 or more times during the night to use the restroom. I've tried to get him to try not eating late in the evening and to take Imodium before going to bed, but even that doesn't seem to do it. Any advise???
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I've had my j pouch for 12 years and unfortunately getting up 1-2 or more some night depending on what I've eaten that day or if im in a flare up is just part of having a j pouch. The only advice I can offer is not eating so close to bed time and always empty before going to bed. I am able to sleep through the night occasionally those are my really good nights sorry not much help, but I think it's just something you get used to over time.
I think most J-pouchers do sleep through most nights (though a smaller percentage of the folks on this site). For me, at least, being unable to sleep through the night is a sign that pouchitis isn't under control.
There have been lots of helpful suggestions posted here in the past, so a search on the site for "sleep" or "night" should find lots of valuable suggestions.
20 plus years with a pouch here. I have never found withholding food after a set time did anything to improve sleep. If anything, it made things worse because I had more gas and churning with an empty gut. Imodium is a funny thing and it is hard to find the sweet spot of when to take it and how much.
For me, the main thing was to treat any pouchitis or cuffitis that was present. That gave me some years where I slept through the night unless I ate something like pizza before bed. Now, the older I get (over 60 now) it is increasingly rare that I sleep through the night. But, it usually is only one night time trip.
I go back to sleep quickly, so I feel rested in the morning. One thing I have been doing since the beginning is not turning the lights on and just using the tiny nightlight in the bathroom. That way I stay in a pretty subdued state and go right back to sleep.
Jan
what is uninterrupted sleep? lol.
I used to sleep through the night in the early years. now I am not so sure if its pouchitis, or age and/or a combination of the two.
I agree with Jan that I do not turn on the bathroom light. but I do have a bad habit of checking my phone, something that if I curbed I would likely have less trouble falling back asleep.
one of the "secrets" that ive read on here recently was a spoon of peanut butter before bedtime (credit to Scott) , I tried that last week and it shockingly seemed to have helped but then I wasn't sure if it was that or the budesonide kicking in, so after 4 days I stopped it and yeah you can guess what happened.
in the early days, I think last food ingestion was a factor but now I do think like Jan does, that actually late eating isn't so much a factor as I think my intestines go to work even with nothing to work on, so there seems to be more churning on empty.
another random idea might be to try Metamucil which might help bind up the water and bile trying to run through. I used to use it religiously for decades but then just got tired of it, I think I need to go back to it. perhaps this will be the push that gets me to do so.
and truthfully your husband should be on here, asking the questions, with more specificity regarding foods, timing and nature of bowel movements, more help can be had. but I can understand his reluctance, so kudos to you for trying to help.
I've had my j pouch for five years now and most nights get up once to go. Seems once or twice is very common. Just the nature of the beast. Luckily I always fall right back to sleep. I have found what I eat or what time I eat it has little to do with it.
Just glad to hear that I am probably normal. My pouch is almost 20 years old and I have always gotten up at least once every night. It's annoying, but just part of my life now.
I try to be grateful even when times are hard. So I am thankful that at least I wake up when I have the urge to go.
C-jay
I think it's all on how late u eat, if u don't want to be getting up at night don't eat too much before bed. I can usually sleep all night but if I ate a lot that afternoon certain things I know I will b getting up during the night. So I think if your husband stops eating late it will definitely help. (: