I had my Surgery over 6 years ago and from that time on I have not been able to have a full night of sleep. Generally I am up every hour or so. Anyone else go through this. Ive learned to live like this but I wish I didnt have to. Dr doesnt seem to interested in my concerns. Its hard to function daily.
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Have tried taking lomotil with Bentyl before bed?
That combination works for me.
Sue
That combination works for me.
Sue
I have the exact same issue. I never sleep more than 2 hours even with lomotil. If I get 4 hours of uninterrupted sleep it is only if I take a xanax or two before bed..not a great way to try and get sleep. I am going to as my GI doc about bentyl when I see him next week.
Bentyl is some good stuff. I take it when my intestines are moving a lot or I have gas.
I take donnatal, and 1 imodium at bedtime, along with 2 allergy capsules (50 mg Diphenhydramine HCl, 25 mg per capsule). I don't have too many problems but get up once or twice in the evening.
Taking an antispasmodic at bedtime is key. Lomotil and bentyl are good but donnatal has less side effects and seems to last longer.
Taking an antispasmodic at bedtime is key. Lomotil and bentyl are good but donnatal has less side effects and seems to last longer.
I am up every night too, but not that often. Have you tried to limit your food after a certain time? That could help.
I find when I take a sleeping medicine I end up having some accidents at night while I'm sleeping. Does anyone else experience this?
Hey Chrfor, yeah I have had that problem in the past too, not always, but it does happen. I can count on 1 hand the amount of times that I've slept through the night since my takedown surgery and that was 3 years ago tomorrow. Wow, I just realized that its been 3 years already. I am going to see about donnatal and see if that works. It would be amazing to sleep through the night. I have another question for you guys though. Do you have any problems sleeping on your side or stomach since your takedown? I can only lay on my side for a short period of time before it starts really hurting and if I try sleeping on my stomach it causes me to have to go almost immediately. Any ideas or help would be greatly appreciated.
I've found that the need to go at night changes as you adjust to your pouch & your pouch adjusts to you. The first 7 yrs or so I was up every night pretty close to 100% of the time; the next 7 yrs or so, 50%; the last 7 yrs or so, rarely (though now I have to get up and pee...lol). The keys for me are (1) eat early (2-3 hrs before bed); (2) use a fiber supplement (I take Metamucil); (3) reduce fluid intake (I try not to drink anything after dinner); and (4) the loo is my last stop before getting in bed. Best wishes, Steve