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I had my Surgery over 6 years ago and from that time on I have not been able to have a full night of sleep. Generally I am up every hour or so. Anyone else go through this. Ive learned to live like this but I wish I didnt have to. Dr doesnt seem to interested in my concerns. Its hard to function daily.
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Hey Chrfor, yeah I have had that problem in the past too, not always, but it does happen. I can count on 1 hand the amount of times that I've slept through the night since my takedown surgery and that was 3 years ago tomorrow. Wow, I just realized that its been 3 years already. I am going to see about donnatal and see if that works. It would be amazing to sleep through the night. I have another question for you guys though. Do you have any problems sleeping on your side or stomach since your takedown? I can only lay on my side for a short period of time before it starts really hurting and if I try sleeping on my stomach it causes me to have to go almost immediately. Any ideas or help would be greatly appreciated.
I've found that the need to go at night changes as you adjust to your pouch & your pouch adjusts to you. The first 7 yrs or so I was up every night pretty close to 100% of the time; the next 7 yrs or so, 50%; the last 7 yrs or so, rarely (though now I have to get up and pee...lol). The keys for me are (1) eat early (2-3 hrs before bed); (2) use a fiber supplement (I take Metamucil); (3) reduce fluid intake (I try not to drink anything after dinner); and (4) the loo is my last stop before getting in bed. Best wishes, Steve

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