Theresa,

 

We just lost Dr. Oikonnomou at Yale Digestive Diseases, who was great, but a very good GI specializing in IBD is Dr. Myron Brand who works out of the same building that Dr. O was in.  I have a scope scheduled with him June 29.  I only met him once but very experienced with J Pouches and of course most of his patients have UC/Crohns.

 

He is the chief of the Yale Shoreline Clinic in Guilford as well, and that's where he does all his scopes, but he has an office in New Haven as well, 40 Temple Street which is the Temple Medical Center.

Thanks for the info.  I'll pass it along to her husband.  Yale New Haven is where I had my surgery 28 years ago but at the time there weren't any colon rectal surgeons who could do the surgery.  It was a trauma surgeon who gave me my pouch.

Theresa 

Yeah but now Yale New Haven Hospital is ranked #17 in the USA for gastroenterology and GI surgery by US News and World Report:

 

http://health.usnews.com/best-...ology-and-gi-surgery

 

When a lot of money is being pumped into a facility things are bound to improve, and they did.

 

If she is just lying in bed at home, be careful of pulmonary embolisms. That is what happened to me.  I was admitted to the hospital for PE, but not for my primary UC symptoms that were out of control.

She isn't able to do much but lie in bed.  I'll suggest to my brother-in-law that she do some moving  to keep from getting a clot.

Thanks,
Theresa

This post made me remember when I was so sick and was barely able to get up. We had a kind, motherly male Rottweiler who refused to leave my side. I was the only one who could take him out to go potty. It was so hard to go out; i just wanted to curl up on the lawn and sleep, but I managed the bathroom trips. I still believe that dog prevented blood clots. 

 

Hope your sister gets relief soon.

It looks like things are a little better for my sister.  She's eating some and moving some.  She's been waiting for her insurance to approve  a prescription for Remicade.  I have been trying to convince her to try VSL#3DS since she is now diagnosed with UC.    I've also been trying to get her to have someone (a surgeon and hospital) in case she doesn't get better.  I went through so much I don't want the same to happen to her.


Theresa