I had my proctocolectomy (colon and rectum removal) almost 6 years ago, I am always tired now XD I know that is normal for us since we do not absorb as much as we use to.
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Yes.
It's been 7 years now.
Retired for a year and a half now.
I just go take 40 winks and go on with my day.
Couldn't do that when working. So I was pretty tired by the time I got home.
Not sure if all experience this "tiredness".
Maybe more will chime in.
Richard.
@Mysticobra posted:Yes.
It's been 7 years now.
Retired for a year and a half now.
I just go take 40 winks and go on with my day.
Couldn't do that when working. So I was pretty tired by the time I got home.
Not sure if all experience this "tiredness".
Maybe more will chime in.
Richard.
By 40 winks you mean a nap right?
When I first got my j pouch, I was up a lot at night and therefore, totally exhausted everyday. Now that I am sleeping better, I find I'm not as tired as I was before the pouch was created.
Before j pouch surgery, I was always exhausted and could nap every afternoon if allowed. Now I actually have a lot more energy. It could have nothing to do with my surgery and everything to do with changing my eating habits, but there is definitely an energy change.
@Former Member posted:By 40 winks you mean a nap right?
Yes. Of course..
@Mysticobra posted:Yes. Of course..
Never heard that expression, but I think thats cool
Yes, the surgeries did take a lot out of me. It don’t have the stamina and every level that I used to have before the surgeries.
@Former Member posted:Never heard that expression, but I think thats cool
Egads..... I'm either old.... Or your young or both.
Lol.
@Mysticobra posted:Egads..... I'm either old.... Or your young or both.
Lol.
LOL! I am 27, how old are you??
@Bubba1028 posted:Yes, the surgeries did take a lot out of me. It don’t have the stamina and every level that I used to have before the surgeries.
When was your surgeries?
@Former Member posted:LOL! I am 27, how old are you??
I just turned a young 64. Lol.
@Mysticobra posted:I just turned a young 64. Lol.
Lol, that is why I never heard of that saying hahaa. I asked my dad who is turning 66 tomorrow if he knew what "40 WINKS" means and he did! That term must have been popular back in your days.
It's still popular..... Pass it on!
Lol.
@Mysticobra posted:It's still popular..... Pass it on!
Lol.
Its probably popular in your age group XD 
And I will hahaa! I love that XD
Nothin wrong with passing phrases. If that's what it is. Down to the generations.
"40 winks". Just a quick nap....
@Mysticobra posted:Nothin wrong with passing phrases. If that's what it is. Down to the generations.
"40 winks". Just a quick nap....
Yeah I know- I was just messing with you. I will definitely pass it along- I think its cool! I use to say cat nap lol
I had mine when I was 37 and I’m 40 now. So it hasn’t been that long but man, I used to have a ton of energy before (when I was healthy without the bad colon). I could do yard work for 4-5 hours at a time. Now I can prob do an hour or 1.5 at most before calling it a day. I just don’t have it in me. Maybe it’s that I never worked back up to the level that I was at before. I was never this super athlete. But I could do hours of yard work and then come in, watch tv and then clean the house like it was no big deal. I couldn’t think of doing that all in the same day, let alone the same weekend now.
Eh, maybe I’m over the hill, lol. I’m ok with it. I’m healthy.
@Former Member posted:Yeah I know- I was just messing with you. I will definitely pass it along- I think its cool! I use to say cat nap lol
It's okay.
I'm messing with you too.
Cat nap is just as old as 40 winks.
@Bubba1028 posted:I had mine when I was 37 and I’m 40 now. So it hasn’t been that long but man, I used to have a ton of energy before (when I was healthy without the bad colon). I could do yard work for 4-5 hours at a time. Now I can prob do an hour or 1.5 at most before calling it a day. I just don’t have it in me. Maybe it’s that I never worked back up to the level that I was at before. I was never this super athlete. But I could do hours of yard work and then come in, watch tv and then clean the house like it was no big deal. I couldn’t think of doing that all in the same day, let alone the same weekend now.
Eh, maybe I’m over the hill, lol. I’m ok with it. I’m healthy.
I've had uc all my life. Of course I really did t know what it was until I had a flare up at 40 years old. From that point on it was a struggle. Especially when I hit 50. After that it was hell. I worked 40 hours a week on hardly any sleep and kept up the yard work for close to a decade. But it got so bad both physically and mentally it was going to put me in a grave. So I did something about it. I am the last person who thought an ileo would be my cure. Even tried a pouch for two years. That was worse than the uc. I went downhill fast and had it removed and have the ileo now.
I may not have the stamina I once had. But that's partly my own fault. I'm lazy. If I exercised I would probably be better. But exercise is so boring. I just can't bring myself to do it.
So..... I just get my "40 winks" or cat nap and I'm good to go again... Lol.
@Mysticobra posted:It's okay.
I'm messing with you too.
Cat nap is just as old as 40 winks.
I've had uc all my life. Of course I really did t know what it was until I had a flare up at 40 years old. From that point on it was a struggle. Especially when I hit 50. After that it was hell. I worked 40 hours a week on hardly any sleep and kept up the yard work for close to a decade. But it got so bad both physically and mentally it was going to put me in a grave. So I did something about it. I am the last person who thought an ileo would be my cure. Even tried a pouch for two years. That was worse than the uc. I went downhill fast and had it removed and have the ileo now.
I may not have the stamina I once had. But that's partly my own fault. I'm lazy. If I exercised I would probably be better. But exercise is so boring. I just can't bring myself to do it.
So..... I just get my "40 winks" or cat nap and I'm good to go again... Lol.
What happened with your J-pouch?? Was it pouchitis that made you go back to an ileo???
@Former Member posted:What happened with your J-pouch?? Was it pouchitis that made you go back to an ileo???
I was told a pouch my not work.
My ulcers were close to the end of my colon. But we could try. So we did of course. It didn't work.
It really only made it worse and in getting the pouch I was hospitalized 4 times and off work 9 months recovering.
It was two years of pure hell. As soon as it was removed I felt relief. And I moved on. I was off work 4 weeks after removal. Had I kept the pouch and fought against getting an ileo I wouldn't be here. It would have done me in. I couldn't even hold it anymore let alone eat. But I worked everyday.
I'm just glad it's over with.
Nobody wants an ileo. I didn't either. But I can eat and I weigh more now than I did before my surgery. Which proves I'm lazy. Lol. I lost 50 pounds. I only weighed 176 to begin with. I'm 182 now.
I still have all my parts down there. She (my sugeon) said she left it intact in case I wanted to get another pouch. Which I will never do. No way. The ileo works well and I'm at an age where it doesn't matter. Vanity. I change twice a week. I could change once but out of an abundance of caution at the beginning I have stayed on the schedule.
@Mysticobra posted:I was told a pouch my not work.
My ulcers were close to the end of my colon. But we could try. So we did of course. It didn't work.
It really only made it worse and in getting the pouch I was hospitalized 4 times and off work 9 months recovering.
It was two years of pure hell. As soon as it was removed I felt relief. And I moved on. I was off work 4 weeks after removal. Had I kept the pouch and fought against getting an ileo I wouldn't be here. It would have done me in. I couldn't even hold it anymore let alone eat. But I worked everyday.
I'm just glad it's over with.
Nobody wants an ileo. I didn't either. But I can eat and I weigh more now than I did before my surgery. Which proves I'm lazy. Lol. I lost 50 pounds. I only weighed 176 to begin with. I'm 182 now.
I still have all my parts down there. She (my sugeon) said she left it intact in case I wanted to get another pouch. Which I will never do. No way. The ileo works well and I'm at an age where it doesn't matter. Vanity. I change twice a week. I could change once but out of an abundance of caution at the beginning I have stayed on the schedule.
I am sorry to hear that! Was it the rectal cuff that was getting really affected??? I am glad you have an ileostomy and are doing much better. And you are not lazy!
@Former Member posted:I am sorry to hear that! Was it the rectal cuff that was getting really affected??? I am glad you have an ileostomy and are doing much better. And you are not lazy!
Also, do you have to do clean outs with enemas and still get pouchoscopys since you have your parts down there?
I just have an anal canal. It's sewn from the inside.
Pouch is gone. I'm done with all that and haven't seen my surgeon in 3 years and have no reason to see anyone. Yet. Lol.
I'm done with all of it except taking care of what I have myself. And that's fairly easy once I got on track. I've had it five years.
Nothing to scope.
Yes. I am lazy. I avoid work at all costs! Lol.
After working and dealing with all the problems I had while at work and at home I'm done.
@Mysticobra posted:I just have an anal canal. It's sewn from the inside.
Pouch is gone. I'm done with all that and haven't seen my surgeon in 3 years and have no reason to see anyone. Yet. Lol.
I'm done with all of it except taking care of what I have myself. And that's fairly easy once I got on track. I've had it five years.
Nothing to scope.
Yes. I am lazy. I avoid work at all costs! Lol.
After working and dealing with all the problems I had while at work and at home I'm done.
Oh good! Glad to hear that! So you must have the "BARBIE BUTT" now lol. That is what ileostomy people call it when the doctors sew the butt shut lol. And you are probaby tall so a weight like that is normal. And majority of ileostomy people are naturally tired and you are in your 60's- you worked your whole life already lol- you deserve a break lol. You are lucky that a ileostomy is working for you! When I had a ileostomy, I had multiple blockages due to a tight/muscular abdominal wall- I was practically living in the hospital at that point lol. I wish an ileostomy worked out for me but at least a J-pouch is working.
When I had a temporary ileo during the j pouch process I only had it 3 weeks. It caused to many problems and she took it off an connected me to my pouch. It was supposed to be a 3 step but I had two surgeries for bleeding and the third was a twisted bowl. So. While in there she just took it out. And hooked my pouch. By that time I was so sick and down to 128 pounds I didn't care.
Nah. I don't have a barbie butt. That's then they take and cut everything out there. I still have a sphincter and an anal canal. It's not sewn from the outside.
As for work.
I had a physical job. Outside in the Texas heat. I could have kept working but just flat out didn't want to.
When the opportunity arose I got my ducks in a row and left early. 32 years at one place was long enough. I know people work longer but I figured 42 plus years of working was enough. I wasn't lazy when I worked.
I figure you think 60 is old. But you will be there quick. It comes faster than ya think. And you won't feel old. I have two boys older than you. 35 and 43. Now you made me feel old. Hahahaha
I don't think most with an ileo are tired. Some days I am. Some days I plug through.
I remember tired. With a pouch. I was lucky to get 3 hours of sleep and then work 8 hours. That doesn't include the pre and post work and one hour drive back and forth. Then I had completely exhausted myself and still only got 3 hours of sleep.
Now that's all ancient history. Sorta. I don't think about it much. I'm in a different place now. Better place.
@Mysticobra posted:When I had a temporary ileo during the j pouch process I only had it 3 weeks. It caused to many problems and she took it off an connected me to my pouch. It was supposed to be a 3 step but I had two surgeries for bleeding and the third was a twisted bowl. So. While in there she just took it out. And hooked my pouch. By that time I was so sick and down to 128 pounds I didn't care.
Nah. I don't have a barbie butt. That's then they take and cut everything out there. I still have a sphincter and an anal canal. It's not sewn from the outside.
As for work.
I had a physical job. Outside in the Texas heat. I could have kept working but just flat out didn't want to.
When the opportunity arose I got my ducks in a row and left early. 32 years at one place was long enough. I know people work longer but I figured 42 plus years of working was enough. I wasn't lazy when I worked.
I figure you think 60 is old. But you will be there quick. It comes faster than ya think. And you won't feel old. I have two boys older than you. 35 and 43. Now you made me feel old. Hahahaha
I don't think most with an ileo are tired. Some days I am. Some days I plug through.
I remember tired. With a pouch. I was lucky to get 3 hours of sleep and then work 8 hours. That doesn't include the pre and post work and one hour drive back and forth. Then I had completely exhausted myself and still only got 3 hours of sleep.
Now that's all ancient history. Sorta. I don't think about it much. I'm in a different place now. Better place.
Dang you have been through a lot! Sorry for all of the complications you have had. Its amazing how you do not have problems with the ileostomy now like you did back then- that is good! Hopefully you do not get anymore problems now. I am glad you are not getting any blockages- those hurt like HELL! Its like trying to pass a baseball. Your kids do not have UC?
@Former Member posted:Dang you have been through a lot! Sorry for all of the complications you have had. Its amazing how you do not have problems with the ileostomy now like you did back then- that is good! Hopefully you do not get anymore problems now. I am glad you are not getting any blockages- those hurt like HELL! Its like trying to pass a baseball. Your kids do not have UC?
Your kids must have got lucky
@Former Member posted:Your kids must have got lucky
Well.
They. Dr's. Are not sure if uc is hereditary.
I would never wish this on anyone.
I hope they never have to deal with it.
I didn't have a flare until I was 40. Exactly. Then I was diagnosed with uc.
But I look back prior to that and never had a flare but I see signs of uc in my past. No bleeding. Because that is what sent me to the gastro Dr. If I would have had any bleeding before 40 I definitely would have went to a Dr. But I didn't.
I had my 40 winks today.
Did you?
Lol.
@Mysticobra posted:Well.
They. Dr's. Are not sure if uc is hereditary.
I would never wish this on anyone.
I hope they never have to deal with it.
I didn't have a flare until I was 40. Exactly. Then I was diagnosed with uc.
But I look back prior to that and never had a flare but I see signs of uc in my past. No bleeding. Because that is what sent me to the gastro Dr. If I would have had any bleeding before 40 I definitely would have went to a Dr. But I didn't.
I had my 40 winks today.
Did you?
Lol.
Its definitely hereditary, it skips generations though. My dad has it but I have it more severe. You did not have a flare until 40?!?!! LUCKY! I had mine at 17. And yeah hahaa!
Some cases are isolated in a family, and others have multiple family members affected. My mother, nephew, and cousin all got nailed with it.
@Scott F posted:Some cases are isolated in a family, and others have multiple family members affected. My mother, nephew, and cousin all got nailed with it.
Does anybody else in your family have a j-Pouch?? Or ileostomy????
One other J-poucher in my family.
@Scott F posted:One other J-poucher in my family.
Wow cool, my dad has an ileostomy.