Short Bowel Syndrome

lovethatgreyMember

My husband will be getting his J-Pouch in the next couple weeks and two surgeries will be required. I was speaking with someone that had a J-Pouch and he wanted us to be aware of the short bowel syndrome phase, which in my husband's case would be between his two surgeries . Can the surgeon recommend ways to minimize these symptoms? If so, what was recommended to you for your short bowel syndrome and did it work? Did your short bowel syndrome symptoms pass after you healed from your take down surgery? I hear it is like all the energy is completely zapped out of you for 3 months or for however long before the take down surgery.

Would like your feedback on this.

Thanks in advance for your replies.

11/21/176:58 PM

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CTB23Member

This is the first time I have heard of short bowel syndrome. I did see some articles about it. Just google short bowel syndrome and j-pouch. It brought up some discussions on the j-pouch group forum. I had the 3 step procedure and had 2 ileostomies (an end and a loop) over a 9 month period. I think I was probably more fatigued during the first few weeks or so. I made sure I ate 3 meals and snacks in between, kept hydrated and still do and went for walks when I felt up to it. Hope things go well with upcoming surgeries!

11/21/178:29 PM

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Scott FMember

SInce the loop ileostomy interrupts the fecal stream before it gets through the entire small intestine, some folks can experience effects from the shorter bowel. The full length (minus a little bit at the end used to construct the pouch) is restored at takedown. So the effect, if any, is temporary.

11/21/1710:09 PM

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