It has been a year after my surgery. I was never told of any possible side affects by any of the medical staff I came in contact with. 

About 5 or 6 months after I my j pouch surgery, I started to have painful erections that would even sometimes wake me up. This has dissipated but there has been little information I’ve been able to find in either articles or by asking my doctor(s). I’ve seen two urologists so far and made a call to the surgeon about this, who did not respond...to not completely sweep him under the bus, I admit to not following up on it.

Last month I was told that I had developed a case of Peyrones’ Disease. The prescription has been taking large doses of vitamin e for the misshapen penis and viagra for the ED. Electively, I also take ginseng, ginko biloba gotu kola, maca and Acetyl L-Carnitine. I also work out and swim five times a week, biking to and from those facilities. Obviously, I’m trying everything I can to stop all of this and have seen some result in the misshapenness but little more in the sexual function, mostly due to anxiety of losing it all. 

I guess my main questions are:

1) was my penis somehow damaged in the operation or did it somehow occur as something related in the recovery
2) what to do to recover?

In short, it has caused a lot of anxiety for me and a level of unpredictability with sex that I find even more anxiety producing, any suggestions on how to proceed with this are appreciated.

 apologies for the length of this....I’m a little freaked out

All good with me.

Hello, I am fairly new to the J poach game, my second surgery was May 20th. It has been a very slow recovery because of an extended stoma and irritated skin. Still, since then i have gotten the urge sexually to you know get off. My first attempt was kind of like my first time trying not sure what to expect two weeks after surgery. It was weird the discharge was yellowish and clear. I ask my doctor everything and said it was normal. My last few times, all was well, not as white as when I was healthy, more in the clear side, telling me I was still not 100 percent recovered down there. 

Still, I am going to see what happens after my stoma reversal on July 1st, it’s been a tough road, but thankfully the urge is still there I can get an election and get off, which is a good sign. I am assuming like everything all will heal up and get closer to normal with time. 

All good w me. I strongly recommend laparoscopic with an experienced surgeon. Very low risk with laparoscopic as I understand it.

My understanding is that with the non-laparoscopic surgery it's 2% chance of permanent ED and 10% of temporary ED.  I was told to bank my sperm if I wanted to have kids.  I did not do so.  I ended up with no issues at all as far as ED right after surgery, although 20 years later did develop occasional ED because that is what happens to males when they age and hit their 40s, depending on various variables.

The risk may well be lower with laparoscopic, but my understanding from the conversations I had with my surgeon was that the colectomy aspect of surgery is what causes this risk, because the nerves are microscopic and it is extremely difficult to avoid cutting them.  Not sure what reduces that risk in laparoscopic because you can't remove the colon without cutting it, but there may be a more targeted approach in doing so with that procedure.  That being said I doubt it eliminates the risk.

There is definitely a risk! But I did hear a 3 step surgery has less risks for men. Which step surgery procedure are you getting???

I haven't lost it, but I definitely haven't been the same since. My surgeries were 11 years ago, and I was 24. Viagra is available as a generic now for about $2 a pill I believe, and it seems pretty easy to get these days with several online services. Exercise helps a lot, especially running for me, and leg and lower core workouts. I have found B vitamins to be very important, too.

Cialis is a little longer lasting than Viagra, and has less side effects. Exercise does help because erectile function is all keyed in to blood flow. At 35 you are still young and shouldn't need meds, but it is what it is. I never had any problems until I got into my 40s and that's when the aging process starts to take a toll on erectile functionality. Perhaps if you stay in shape and use ED meds you can manage it. But it does get tougher when you get older, regardless of anything else. My doctor analogized erectile function to a car engine- as it ages little things start to break down that prevent it from running smoothly and diet, health, weight, conditioning etc. all become more important.

I had my total colectomy about 16 years ago and my j-pouch surgery about 8 weeks after. When I attempted my first intercourse with my girlfriend (now wife) after the surgery I was not able to ejaculate, actually it was a little painful. This lasted for almost two months and I was getting gun shy of having any sex. My ejaculation finally returned to more or less normal (we now have two children) but it seems with less feeling, or pleasure (for want of a better word) when I orgasm.

For about 10 years after the surgery my sexual abilities were more or less normal (occasional erectile dysfunction  but infrequent) but since my mid fifties I have needed medicinal help and LOTS of stimulation by my wife to achieve an erection capable of penetration. We do still enjoy our sex lives though and appreciative of the times we are able to have it.

Glad everybody is doing good!

I had no trouble but it was a huge relief  getting an erection  in the hospital but I couldn't really show anyone.

@Chook2 posted:

I had no trouble but it was a huge relief  getting an erection  in the hospital but I couldn't really show anyone.

LOL!

Some personal experience.

Male (obviously), 33, happily married, and I've lost all erectile function after the J-Pouch creation surgery (it was an open surgery due to previously formed adhesions). J-Pouches are still an extremely rare thing in Russia, but I've been able to find an experienced surgeon in Moscow. Still, it's never an exact science.

Around 3 months out I've had my first sexual dream, and now I'm slowly able to get a kinda half-boner. It's still nowhere near rock hard, but we're getting there.
I still have some sensation down there, and month after month it's getting a bit better. I am able to masturbate and get to an orgasm, but nothing comes out. Actually this part doesn't concern me, as I'm not planning on having kids anyway (was originally aiming for a vasectomy after takedown, but I wonder is it even necessary with retrograde ejaculation).

At this rate of improvement, I don't expect getting hard as in "penetration-ready hard" in at least another couple of months. I will consult with my surgeon after takedown (scheduled 3 weeks from now), maybe he will refer me to someone and fix me up with some meds, but I'm not undergoing another surgery to fix my erection. If it's permanent, so be it. It's not the end of the world.

I had my colon removal and taken down surgery about 18 years ago. I was 44 at the time with strong erections. For about a couple of months after the surgery I was able to achieve erections, but they were definitely not as strong as before, and when I orgasmed nothing came out. It was actually a little painful and I got a little shy of even trying to initiate sex.

It took a few more months, but I eventually started to ejaculate again (my wife and I have had two kids since). I never did fully regain the feeling or the firmness I once had, but lots of stimulation from my wife and Cialis make things work, at least good enough that we can be intimate.