second kpouch surgery

Hi rockyg,
I don't know whether or not you remember me, but I met you in the hospital hallway when I had my Kock pouch repair surgery last year. Just wanted to let you know I emphasize with you as I had an ileostomy for 27 years before I got my Kock pouch. I'm now on my second Kock pouch, after a total of 5 surgeries. So far everything is working as it should except for tons of excess mucous. Hopefully Dr. Cohen will try to give you a Kock pouch back again. - Dixie

I haven't but I do know of people who have gone back and forth.

There are definitely a lot of people who go from jpouch to kpouch. I have also heard of people going from kpouch to BCIR and vice versa.

Before I can get a definite "yes" for being a candidate for a kpouch, I'm getting an x-ray to make sure I have enough intestine in case the pouch needed to be removed later on. Maybe ask for that?

I had a jpouch, then ileostomy, 5 kock pouch surgeries, and then finally went back to an ileostomy since I couldn't take it anymore. My surgeon told me I am still a candidate to have another kock pouch surgery in the future. I hate my ostomy too..so im right there with you!

Rocky,
If anyone can do it, it is Dr C, he rarely gives up on a patient so I am sure if it is possible then he will. He has always told me that if ever he has to move my pouch he can always put it on the left...so there might be a chance for you.
Sharon

Hmmnn....the only thing is I'd be very worried about is ending up with short bowel syndrome...

Once you go under 2 meters of intestines you face Short gut syndrome. If you have enough left over after surgery you might be ok. Sometimes the reward outs the risk. I was this way when I said I was getting the BCIR since I have FAP and the nurse at MD Anderson threw the book at me about this very subject. I risk losing more small intestine but I wasn't going to live with a bag. It was death I told them or the continent ileo. Hell I even had it in paper on my surgical release, no permanent ostomy was to be done if my mucosa wasn't long enough to make the pouch and leave colon in tact and I was going to find plan b,c,d,e....

So ask about SGS and see if you have enough bowel. Even if you do get SGS there are ways to medically treat it so it has a bandaid on it basically, but there is no cure for it.

I had a Kock;1979 a standard ileo 2003 and a second Kock 2006. I am fine.
If Dr. Cohen did your first and second surgeries then he has your surgical records and will know what shape you are in.
He will not put you at risk. It's not in your best interest or his!

Hi Rocky,
Just wondering whether or not you met with Dr. Cohen & if he can give you another Kock pouch??

Thanks for asking dixie i see doctor Cohen on Oct..30 will let you know.