I constantly have discharge and all the other things that come along with most likely stool being in my vaginal area. I can get no relief I am miserable! I have like 8-10 Bowel movements a day liquid and if I hold it too long I feel this sudden gush coming from the front and my pad will be completely full 😞I am scheduled for a pouchoscopy in a few weeks but I have been living with this for about 4 years now and feeling really discouraged bc I feel everyone I mention it to tells me they doubt it and just dismiss it. My surgeon retired and so I have no way of contacting him now so I’m just visiting diff gyn and rectal surgeons hoping they find something. Any advice would be great! Thanks
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Also forgot to mention it seemed to all start when I had a bartholins cyst
Have you done the poppy seed test to prove that there really is such a fistula? Then at least you could be sure about it.
No what is that?
Ty
It looks like the poppy seed test will work well on a recto-vesical fistula, but I think it will work less well (if at all) for a recto-vaginal fistula. They both have the same abbreviation, unfortunately.
@Millertime I had some leakage recently and figured its a RV Fistula, then saw pus coming out so my surgeon prescribed Augmentin and it got much better. I am scheduled for a pouchoscopy this week, he said if he feels that it needs to be repaired he will do the flap procedure to close it off.
I did some research and spoke to other j pouchers who told me to try to wait as once you do 1 repair, the second one is more complicated.
I will have a conversation with my GI tomorrow and surgeon before the procedure.
you can dm me for more info on my doctors
much luck!!!
stay stong!