Reversal of J Pouch after ONLY 3 months to Permanent Ileostomy

After only 3 months? seems like not a long time at all. I would see a different GI that is well versed in Jpouches before you make a huge life decision. Try and see Dr Bo Shen at the Cleveland Clinic if possible. He is the best

Have you tried a high dosage of VSL#3 probiotic? A few years ago, I was recommended to try 8x sachets per day by the company which manufactures them. My circumstances were different to yours, but research does appear to back-up this particular probiotic. However, it is quite expensive.

I have had my j pouch since 2014. I believe each experience is different and for some, it can take 12 months or so, to 'settle down.  I was doubtful as to whether I was going to have the final surgery, that finally ended up with the j pouch. However, I now have absolutely no regrets. I find it far more convenient than having an external pouch. But each of us has different experiences and some are very happy with their ext pouches. If it were me, I'd definitely persevere, but appreciate it isn't easy for you. In the meantime, maybe seeing another GI would be a good idea. I wish you well.

Give it more time you and your pouch deserve it. I have had my jpouch over ten years. The first year was a learning curve by trial and error. I would talk to your surgeon also read the boards everyone is different. I take a muscle relaxer to stop going to the restroom a lot. I also have B.Burn sometimes but it got better after I stopped eat tomatoes and I just figured that out about 8 months ago. things get better be patient. Find a General practitioner and a GI that are very familiar with Jpouch and UC. 

I would wait a while. Had my pouch since 2012. Also has to go through multiple reversals for short periods of time to allow type ulcerations and cuff to heal. I agree CC is the best option. If your close to Florida CC look up Dr Eric Weiss. Good luck and don’t give up. 

Most people adapt well to an end ileostomy. A temporary diverting ileostomy is not the same and prone to poor seals and leaks.

That said, 3 months seems awfully quick, even though you’ve tried pretty much everything except biologics. With a history of lymphoma, biologics are probably contraindicated, as are azathioprine and methotrexate. The only other suggestion I can think of is steroids (short term) and more time.

Jan

Thanks everyone for your responses, I was on Prednisone for some, time with no impact, I have started VSL3 yesterday.

I am going to be admitted to the hospital this afternoon for TPN, 

TPN is a way of supplying all the nutritional needs of the body by bypassing the digestive system and dripping nutrient solution directly into a vein.

I was on TPN for a few months before my surgeries due to malnourishment and dehydration.  It eventually helped along with an appetite stimulant.  I had lost 35 lbs. weighing about 80 at the time.  I'm just a little over 100 now, 15  months after takedown.  And feeling much better!  Good luck!

Good luck with the tpn. I hope this helps you feel better.

TPN should buy you some time to sort this out. I cannot imagine that VSL#3 would turn this around when you had no improvement with all those meds. One thing I do not see mentioned and forgot to ask about is whether you have been tested for a C. difficile or CTM infection. Those would not likely respond to the treatments you are on.

Jan

I did have C-diff and was treated for that while on TPN.  I agree.  Get tested for C-diff if you haven't already.  It reeks havoc especially with UC flare at the same time.  That was my situation.