Skip to main content

I've posted about how I've been sleeping so much after finally getting pouchitis relief.

It hasn't been quite a week yet and I still need lots of sleep. But I feel like I'm on that edge where it's time to push myself a bit. You know, like when you get to that point where maybe it's time to push to regain strength even though it's hard.

I'm doing that a bit today and it is hard. Plus I have mild nausea from Flagyl. I guess I just have to forge forward....it's all part of the process, right?

Just needed to vent....It's certainly nothing like recovering from past surgeries, but I am familiar with the energy drain bc of those surgeries.

Replies sorted oldest to newest

Kia,
Your body will tell you what is right...if you feel like you need to give yourself a little tap on the butt and to force yourself to move forward a bit then you probably do...your brain is getting your body ready for the effort (which is so much better than your body having to force your brain!)...but follow those instincts...take it slow and use increments...10mins at a time...then rest a bit and move again...I am very much the over achiever in this domain but when I really do push myself beyond my limits I crash and burn later...and that is counter productive...so go for it, your a chomping at the bit psycologically speaking...but don't push too hard.
Sharon
ps...I hear you on the antibiotics...Am on my 3rd protocol in 5 weeks...yuck!
skn69
Thanks all. I haven't posted much bc flagyl has really taken me out with fatigue. I responded to it immediately when I started, but could not usually get up to three a day. Even two is exhausting me and my symptoms are pretty well controlled after seven days. I didn't take it today bc I was a complete zombie and needed to be able to drive by late afternoon for the kids. I am going to try one per day at nite in hopes I can function during the day!
K
I'm concerned you are not taking as much flagyl as prescribed. I take it for c-diff and one time didn't take the last 4 or 5 doses and wonder if that is why it came back a few weeks later.

If it is that hard for you to take can you take something else? I know some people can't take it at all.

You have to do what you have to do to take care of your family! So you had to cut back. I just hope it doesn't set you back in kicking your pouchitis.
TE Marie
Hi Marie, I ended up talking with the doc's office yesterday and was told to at least take 2 until my appt on Thursday.

I did it yesterday and had no probs. I am trying to take all three today.

I definitely don't want to drag out the recovery, either.

I need to get back on my feet. The husband is being patient, but it's been a long 27 year battle and he is also worn out from it.

My daughter was upset last nite bc I haven't been able to be "present" very much lately.

I'm just going to have to get back in the ring and fight harder.
K
It is so hard to explain to others. Please tell your daughter you are ill and doing the best you can. I don't know how old you or your daughter are.

You will just get more ill if you do too much. Trust me, I did that when I had UC and pushed myself right into fibromyalgia. I'm not saying that will happen to you but once you get an autoimmune disease others can and do follow. Once you are run down the easier it is for something else to grab hold.

Have you had your thyroid, D, B12 and Iron levels checked lately too?

I hope you have a good rest this weekend and you are off of flagyl soon. It is nasty!
TE Marie

Add Reply

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×