Did you have your pouch removed?

Hi frosty
No just disconnected

I wrote something in the women's group about this very thing.  Antispasmodics like levsin. Helped a fair amount...every month badness. I guess some women go on birth control to suppress the cycle and decrease symptoms.  I sit on heating pads too.

Saff, I get this a lot, 

Why were you just discounted?  Had emergecry surgery due to bad pouchitis. 

Im assuming you have a loop like me.

Im having real issues. I have to wear convec to stop leaking which is not comfortable.

I can't get enough calories into me this is a real problem

Any help would be appreciated

thanks 

Hey all, thanks for your responses, I did have my pouch disconnected 5 years ago due to pouchitis. I have been good since then, but after reading some posts on the forum I think I have either diversion pouchitis / colitis or cuffitis . I hope I can find a way to manage this without needing to remove it with another surgery. 

 

I actually have an end ileo - not a loop. I don't have trouble with calories - but if I were you I'd seek help from a dietician. 

 

Thumprhare - Im not sure this is period related anymore as it is ongoing. But thanks for that tip re antispasmodics. 

 

 

I wonder why my surgeon gave me a loop and not an end? 

Can u reconnect with a end? Would u ever consider it again?

I would ask your surgeon for some meds like Canassa or fatty acid enemas.