rectal irritation

SaffMember

Hey all,

I'm just wondering if any of you experience occasional rectal irritation/ inflammation after having your pouch disconnected. I've had my ileo back for 5 years now - but occasionally I get this feeling almost as though I have UC back again - I feel like I need to go the toilet a lot, its awkward to walk as it feels like my rectum is going to prolapse - it feels very inflamed. I have a fair bit of fluid also. It seems to be aggravated with menstruation - so not sure if its connected with that, or endometriosis. Any thoughts - any other ladies get this with menstruation?

I was about to go on a 4 day hike - but now feeling unsure if I can with this inflammation.

Generally I have been happy I have gone to my ileo though.

8/19/156:38 AM

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FostyMember

Did you have your pouch removed?

8/19/157:12 AM

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SaffMember

Hi frosty
No just disconnected

8/19/158:06 AM

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thumprhareMember

I wrote something in the women's group about this very thing. Antispasmodics like levsin. Helped a fair amount...every month badness. I guess some women go on birth control to suppress the cycle and decrease symptoms. I sit on heating pads too.

8/22/1512:13 AM

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AllyKatMember

Saff, I get this a lot,

Why were you just discounted? Had emergecry surgery due to bad pouchitis.

Im assuming you have a loop like me.

Im having real issues. I have to wear convec to stop leaking which is not comfortable.

I can't get enough calories into me this is a real problem

Any help would be appreciated

thanks

8/22/1511:08 AM

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SaffMember

Hey all, thanks for your responses, I did have my pouch disconnected 5 years ago due to pouchitis. I have been good since then, but after reading some posts on the forum I think I have either diversion pouchitis / colitis or cuffitis . I hope I can find a way to manage this without needing to remove it with another surgery.

I actually have an end ileo - not a loop. I don't have trouble with calories - but if I were you I'd seek help from a dietician.

Thumprhare - Im not sure this is period related anymore as it is ongoing. But thanks for that tip re antispasmodics.

8/23/155:44 AM

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AllyKatMember

I wonder why my surgeon gave me a loop and not an end?

Can u reconnect with a end? Would u ever consider it again?

I would ask your surgeon for some meds like Canassa or fatty acid enemas.

8/23/151:52 PM

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