To keep the story short my GI thinks I now have Crohns three years after surgery. Prior to surgery I was on Remicade which worked for a while until one day it failed, and Humeria which never worked. I have been on Cymzia for the past 6 weeks with no improvement what so ever... I have actually continued to backslide to the point of being sicker now than I ever have in my entire life and that is saying alot... I asked my GI what the next steps are and he is now thinking either Tysabri or IVIG... I did a search on here and came up blank which is a bit scary to me since there are alot of people here who have been pretty sick and on a plethora of meds...
So my question is has anyone ever been on either of these meds
Whats the scoop on them? good, bad, ugly
Should I run..... LOL
I had an appointment schedule with Dr. Shen a few months ago but I had to cancel it due to my pregnant wife being admitted into the hospital at 30 weeks for low amniotic fluid. Now that our son is here and doing great, I am thinking that it is time to ditch my current GI and head to Dr. Shen!
Sheesh when will it ever end...........
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