Skip to main content

To keep the story short my GI thinks I now have Crohns three years after surgery. Prior to surgery I was on Remicade which worked for a while until one day it failed, and Humeria which never worked. I have been on Cymzia for the past 6 weeks with no improvement what so ever... I have actually continued to backslide to the point of being sicker now than I ever have in my entire life and that is saying alot... I asked my GI what the next steps are and he is now thinking either Tysabri or IVIG... I did a search on here and came up blank which is a bit scary to me since there are alot of people here who have been pretty sick and on a plethora of meds...

So my question is has anyone ever been on either of these meds
Whats the scoop on them? good, bad, ugly
Should I run..... LOL

I had an appointment schedule with Dr. Shen a few months ago but I had to cancel it due to my pregnant wife being admitted into the hospital at 30 weeks for low amniotic fluid. Now that our son is here and doing great, I am thinking that it is time to ditch my current GI and head to Dr. Shen!

Sheesh when will it ever end...........
Original Post

Replies sorted oldest to newest

Make sure you really investigate tysabri. I believe this is the MS drug that caused some serious issues, including fatalities in some patients. I also knowmthat many in the MS community wanted to keep the drug anyway because of howmwell it addressed MS symptoms and many were willing to take the risk. So, just really research the drug and be sure you feel comfortable with the potential side effects.
Suebear- I agree and actually already sent my GI an email asking to get me in so we will see how it goes...

JillM- I have read a little and an not really digging even trying this med. It took me about a month to agree to the Cymzia and the only reason I did was because my wife was in the hospital and I couldn't travel, but now that she is out I can travel, and my son is doing well I can travel wherever need be...

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×