Skip to main content

10 replies

Problems with mild incontinence/leakage

BebeksporBebeksporMember
Hi everyone,
I'm 7 months post takedown and have been on cipro for a couple months, now to take it indefinitely since my symptoms come back as soon as I stop. My life would be pretty great except for one thing - I still have leakage, that's the problem that hasn't gone away, even on antibiotics. The funny thing is that I haven't leaked at night for a few months now, it's only during the day.
It's driving me INSANE. I can feel it coming out and no amount of squeezing stops it. I have to wear a pad all day and I'm so sick of it! The pads always rub against me and irritate my skin more. The leakage burns and makes my skin itch. I would loooooove the freedom from the butt creams, pads or tp constantly rubbing my skin, making it more itchy and irritated.
How long did any of you have this problem?
I have an appt Oct 6 to see the Pelvic Floor specialists at Mass General. I need to find some solution for this!
Thanks,
Katie
Original Post

Replies sorted oldest to newest

Scott FScott FMember
You don't say what you're using besides Cipro. Metamucil (or Citrucel or Benefiber) might help. Lomotil or Imodium might also help, but I'd try the Metamucil first.

The Cipro probably won't work forever. Some folks here rotate antibiotics every 2-3 weeks to extend their overall period of effectiveness. I tend to stay on them longer, months or years, but eventually you'll probably need another choice.
BebeksporBebeksporMember
Yes, I dread the day that cipro no longer works for me :/ I'm going to have the doctors make a plan for me, I've heard some say to rotate and some say to stay on it until it stops working. If I don't like the plan, I'll go to Cleveland Clinic. There has to be a solution.
I was taking Imodium, lomotil, and Metamucil several times a day, but felt that I no longer needed them once on cipro (it seemed to make the stool too thick and difficult to pass). I only take them at night now. I've been having this gross leakage issue from the start. Maybe I'll try the Imodium etc throughout the day again.
Katie
W wsh6745Member
I have had to get dilation done 4X since my takedown and it has also caused some leakage. I can also feel it coming out and it feels like there is a lot there but there are literally just a couple of drops. It sounds weird but I take a cottonball and tear it into about 4 or 5 pieces and I take one of the small pieces and tuck right in between the cheeks, right up against the anal opening. It works great; its absorbent and so small that it doesn't cause irritation. Since it catches all the drops - I also no longer need to use any ointments. I am hoping this isn't a permanent problem for me either because it is frustrating, but the cotton ball has been a life saver for me.

I am doing Kegel exercises too whenever I think of it hoping this will help. My doctor seems to think they will.

Good luck! Try it!
BebeksporBebeksporMember
Yesterday I started Metamucil and lomotil during the day again. Sadly, my luck ran out, ha. I was up several times last night to clean myself after having passed stool with gas, and I've been leaking gross pasty stool all day! Arg!
I ate a ton of baked lays yesterday, maybe the potato chip poster was onto something Smiler
Katie
J JJAMember
I had leakage issues after my sphincter was damaged. I took (still do) a LOT of Metamucil capsules and immodium daily, actualy some codeine, too, and tuck half a large cotton ball all the way up into the anal canal after every bowel movement. It works wonders. The drugs help with thickening, but I could not LIVE without the cotton ball tucked up there-without it I have so much leakage I'm basically incontinent. With it-leaks are down to only a few a week, and the butt tissues are in much better shape. Also, I use the Bio-Bidet. It has an "enema" function, and regular cleaning also seems to help me keep down on leaks. The cotton ball and bidet have been lifesavers!!!

Add Reply

Views: 290
Post
Copyright © 2019 The J-Pouch Group. All rights reserved.

Membership Required

We're sorry. You must be signed in to continue. Sign In or Register
×
Are you sure you want to remove from your Block List?
×
Loading...
×
When you block a person, they can no longer invite you to a private message or post to your profile wall. Replies and comments they make will be collapsed/hidden by default. Finally, you'll never receive email notifications about content they create or likes they designate for your content.
Note: if you proceed, you will no longer be following .
×
Link copied to your clipboard.
×