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8 replies

Probiotics

B bratcatMember
Back Story:I just came back from a pouchoscopy (first time with out sedation...wasn't as bad as I thought, but still not a fan). I have a fistula that showed up last weekend (MRI this weekend to see where it's coming from...), and also had a blockage last weekend (yay me!). Anyway, he wanted to check out what was going on because I have been experiencing urgency and such. He found inflammation in my small intestine and now is thinking it may be Crohn's not UC that I have (he isn't the doctor who diagnosed me. I was at a pediatric GI at diagnosis, and the markers pointed at UC). He thinks this because of the inflammation and the fact that I've had pouchitis and the like very much. Either way, he had the same course of treatment. He's putting my on Pentasa and 6mp because Flagyl and Cipro made me sick the last time (and that is a short term fix).
He also wants me on probiotics. I was taking VSL3 DS (double strength) a while back. I hated it because it's powdery and tastes gross. But, that's what he wants me on. He sent it through to the pharmacy because it's much cheaper through insurance BUT my insurance no longer covers it. If I buy the over the counter VSL3, it's close to $100 a week. I'm not that rich! I'm getting in touch with my GI to see what other probiotics I can try.

What probiotics do you all take? Why is one better than another? I know VSL3 has 8 different strands, but why is one strand better for us than another?
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P phonix2gMember
I take "Ultimate Flora" with 10 different strains and 30 billion live cultures. It was one of the ones I found that had a decent amount of live cultures that wasnt that expensive. I think I paid 15 bucks for 30 of them. Of course it is a step down from the potency of VSL you're used to but if you don't wanna go broke its a better way to go. I tried getting VSL through my insurance and it was ridiculously priced. I don't notice a difference from when I take it and the days I forget but I figure Id use it more for maintanance purposes.
P Peace (Guest)
quote:
He also wants me on probiotics. I was taking VSL3 DS (double strength) a while back. I hated it because it's powdery and tastes gross. But, that's what he wants me on. He sent it through to the pharmacy because it's much cheaper through insurance BUT my insurance no longer covers it. If I buy the over the counter VSL3, it's close to $100 a week. I'm not that rich! I'm getting in touch with my GI to see what other probiotics I can try.
I get VSL3 for no charge since I'm living in poverty and qualify for it through NORD which is a charity that pays for it. I mix it well too and can't really taste it. I wish I could say the same for Metamucil when it comes to that. Roll Eyes
L ljkMember
Hi My MD gave me probiotics too Align samples, I took the first capsule and found myself inthe bathroom all day. Do they have a laxitive in them? He also never explained why I was to take them. Ya, I did not like that at all. I think I need to find a new MD to see. Well then I tried them again but this time I opened the capsule and only used half and I put it in my drink and that was Ok! What are the benefits? Does every jpoucher use them? thanks so much LJK

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