Hi Everyone, have had a J pouch since 1992 due to UC. Most of these years have been great but last few have been very painful resulting in being chained to the toilet most days despite medication. Also had 4 x adhesion surgery in last two years. My specialist has recommended reversal due to ongoing pain and frequency. My question is have any long term J pouchers(20 years+)had successful reversal to the illeostomy. I really cant remember what the illeo was like as it was 23 years ago, but I didnt really like it, I hated the paste and it was very time consuming, perhaps there have been improvements in the appliances since then, I hope so!!
My surgeon said during one of the adhesion surgeries that my bowel was enlarged and pink, which makes me worried whether reversal would be successful. Or if this is how the bowel ends up after 20 odd years with the J pouch. The surgeon hasn't commented on whether it would effect going back to the illeo, I see him in two weeks and will ask him.
Hope you can give me any advice,
Thanks, Heather
