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Hi Jpouch People -

I am a quite member who has had great success with my jpouch which is now 5 years old. Went to the GI for a check and decided it is time to do a pouchoscopy to just check things out which was done this morning. Everything has been great besides my jpouch being a bit louder since I had a c-section 6 months ago so they wanted to see what is going on.

Here are my results of my report. It seemed like my GI was surprised that i was feeling as well as I am. i was awake and they pointed out all the ulcers. Do I have chron's and they just are waiting for the biopsy results? Obviously i have pouchitis but is it more than that?

Any insight would be greatly appreciated as I dont want to wait on pins and needles for 2 weeks!

Results:
- ulcer in ileal pouch
-ulcer in ileum
-ulceration in the distal pouch
-ulceration near opening to the ileum
-scatterd apthous ulcers in ileum

The GI put me on entocort and flagyl to treat the pouchitis. Oh and VSL#3.

Thanks so much for your help!

Replies sorted oldest to newest

It could be Crohn's, but just based on those findings, I don't think the diagnosis could be made. Just because there is some inflammation and ulcers outside of the pouch, it still does not mean Crohn's, especially since it has not been that long since the c-section. I even had some serious cobblestoning in my pouch at one time, and there was no Crohn's talk.

Jan Smiler
Jan Dollar
Hi Doodle Lover! I was very interested to see your post. I just had an upper endoscopy and flexible sigmoidoscopy done today. The upper endo showed some minor irritation in my esophagus from acid reflux, nothing more. The flexible sig however showed ulceration and inflammation in almost exactly the same areas you reported!

I've had pouchitis before and am not experiencing any symptoms as I had with it. The reason for the tests today was to see if we could figure out why I keep having chronic dehydration issues. Needless to say I was quite upset to see pictures of ulcers again! My colon surgeon has been reassuring me each time I've been hospitalized for the dehydration, and about every other time also for partial bowel obstruction, I did not have Crohn's. Now I wonder!

Will have to wait for the biopsy results. Hope things are going well for you!
Txgal58

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