Can someone tell me if anyone with a pouch needs to get a pouchoscopy if everything is going fine with your bowel movements and all?? Is it important to get u one or can you just live life without getting one??
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See this thread:
http://j-pouch.org/eve/forums/...127007026#3127007026
It's important to get one every year (according to Dr. Bo Shen and Dr. O, his disciple and my GI) due to the threat of rectal cancer in the retained cuff, especially for those who had a dyplasia diagnosis before colectomy. Note that this data is just getting realized because they have only been doing J pouches in mass production since around 1990 or so and we now see people living 20 plus years with the pouch so this date just is coming available.
Others, possibly less concerned with or oblivious to the CC findings, say every 2 years, and others say no scope at all unless you have some issues. This sort of plays a game of roll the dice with your rectal cuff and it is up to you if you want to participate in that dice roll.
Dr. O told me the CC data shows enough to warrant annual scoping to get biopsies of that rectal cuff. That is where it will start if you end up with cancer in the pouch. But, he stresses that cancer of the ileal pouch is rare.
http://j-pouch.org/eve/forums/...127007026#3127007026
It's important to get one every year (according to Dr. Bo Shen and Dr. O, his disciple and my GI) due to the threat of rectal cancer in the retained cuff, especially for those who had a dyplasia diagnosis before colectomy. Note that this data is just getting realized because they have only been doing J pouches in mass production since around 1990 or so and we now see people living 20 plus years with the pouch so this date just is coming available.
Others, possibly less concerned with or oblivious to the CC findings, say every 2 years, and others say no scope at all unless you have some issues. This sort of plays a game of roll the dice with your rectal cuff and it is up to you if you want to participate in that dice roll.
Dr. O told me the CC data shows enough to warrant annual scoping to get biopsies of that rectal cuff. That is where it will start if you end up with cancer in the pouch. But, he stresses that cancer of the ileal pouch is rare.
My surgeon says every year. They of course all have different opinions on this. It's not big deal to me so I will go each year.
Hello guys I had my first pouchoscopy today and I got it without anistesia. It was not so bad. All my results came out good. Pouch looked good. Im happy today everything went well. I hope life gets better for all of us. Thank you guys for the reply.
I have my first one today at 11:30, very nervous.
Hi there let me know how everything went good luck.
Scope went well. No sedation. Doc took a couple of biopsies and will call me in a couple of days with the results. He is hoping the 30 day round of cipro knocked out whatever was going on. I sure hope so. If all stays calm I don't go back for 6months. I sure hope that is the case.