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Hi all,

I've had a great last half year, takedown in December 2019 and then mostly 2 stools a day, in the mid of December 2020 I've started to feel tired/fatigued again. Since one week I've had leakages/accidents at night, 3 stools per day, blood and I'm tired no matter how much I sleep and could fall asleep during sports. My addison's is in the low normal again/healthy region so I could reduce my cortisol intake and I hope it isn't the cause; at least for the blood and the night leakages.

When I read the signs of pouchitis of the Mayo Clinic I felt like I had all apart from increase frequency. I also do not have to run to the toilette but I never had to directly after takedown.

Is it possible or did somebody experience pouchitis with a low stool frequency? I am in the final phase of my studies and cannot have a long phase like this  right now....



Thanks in advance and best regards!

Last edited by GerdMüller
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@GerdMüller posted:

It's difficult rn due to COVID and I somehow have to fit it in... But I don't want to take it without an examination. The last time it were simply fissures.

I am sorry you are suffering honey! Definitely call the Gastro tomorrow and definitely get fitted in. We only have one pouch so definitely do what you can. I will keep you in my prayers

Keep us updated dear

So I've got an appointment next month on the 8th. The doctor told me it could be pouchitis but I should live as usual until that , i.e. no adjustments regarding sports and diet. Of course I'll decrease it and try to eat unproblematic stuff.

I am currently hoping it really was just a fissure because I usually never had pain and a bad ability to interpret my body due to a couple of conditions such as addison's. This also was the state with the approved fissure, and suppositories with Cholesteramine seem to stop the bleeding plus this night was without an accident.

I hope the tiredness was due to my addison's because december was an extrem stressful month...

I'll update after the pouchoskopy.

@GerdMüller posted:

So I've got an appointment next month on the 8th. The doctor told me it could be pouchitis but I should live as usual until that , i.e. no adjustments regarding sports and diet. Of course I'll decrease it and try to eat unproblematic stuff.

I am currently hoping it really was just a fissure because I usually never had pain and a bad ability to interpret my body due to a couple of conditions such as addison's. This also was the state with the approved fissure, and suppositories with Cholesteramine seem to stop the bleeding plus this night was without an accident.

I hope the tiredness was due to my addison's because december was an extrem stressful month...

I'll update after the pouchoskopy.

Sounds great! Good luck

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