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4 replies

Pouchitis with blood loss?

JK Johnny KMember
Has anyone experienced pouchitis with a large amount of blood loss? I've had my pouch since 2001 and have only had 2 or 3 mild cases of pouchitis, wich were resolved easily with antibiotics. Last week I spent four days in the hospital and lost A LOT of blood. The GI that looked at my pouch after the bleeding had stopped (2 days later, becuase I went in on a Sunday and they they did an upper GI first on Monday) couldn't find an active bleed, just the "old" leftover blood. She said she thinks it was a case of Pouchitis. They prescribed Cipro and probiotics. Maybe I was lucky and caught the other ones early, but I didn't realize pouchitis could cause that much blood loss. Anyone else ever experience this??

Thanks,

John
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Jan DollarJan DollarModerator, RN, retired
Pouchitis, even a severe case, should not cause massive bleeding. The exception might be if you were unlucky enough to have an associated ulcer that eroded into an artery or larger vein. Regardless, I would not expect old blood from a bleeding pouch to be seen by an upper endoscopy.

Glad it stopped on its own!

There are a few folks here who get seemingly inexplicable acute bleeding episodes. The GI tract is pretty long (20 feet of small bowel alone), so it sort seems like a cop out to me to call it pouchitis.

Jan Smiler
JK Johnny KMember
Jan, she found the old blood when looking at the pouch. By old she meant from the previous day or two. I thought that was excessive myself for pouchitis, but then I've never had a bad case of it. She also said there could be an issue in the part of the intestine that they can't reach to see. Said if it happened again they may try the camera pill. I just hope its something the cipro can fix. Never found an ulcer in pouch or stomach, even though my stomach has been rather upset for several weeks.

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