I have been dealing with chronic pouchitis for at least 5 years or more now. I have been given antibiotics for the most part. I am trying a new doctor because I can't get in to the Mayo Clinic to see the doctor I want to see (insurance issues) so, I just had an exam. (Moved to Florida 2 years ago) The report says "pouchitis" which of course I knew that and the doctor was totally shocked to hear that I have been using antibiotics for the pouch infections. Now I just sent a message to tell them I am getting worse, can you please prescribe something and what did I get back? "I am sorry to hear you are feeling worse, but unfortunately, you have to wait to see your doctor so please keep your appointment. I doubt that you have pouchitis and this infection could be coming from something else in your body." WHAT??? I have had my pouch since 2010 and have had no real problems but this and some cuffitis issues. OK, I do know my body and I know what the heck I am talking about. Here's another thing I want to explain; the doctor that did my pouch exam was not the same doctor who I am seeing so, because of that, I have to wait until the appointment. Are you serious?? I am so upset right now. I want to be patient and wait but I am about to head back to North Carolina just so I can see my doctor there. Mayo Clinic is a pain to get into and my insurance will not cover it as of now. I didn't push hard enough I guess with that either. Please someone tell me that I am making sense here? I am concerned and frustrated, not to mention annoyed and hurting. (I am planning on trying some other things while I wait and lucky for me I do have some antibiotics I can take for now)
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