Pouchitis flare up / drug reaction

This sounds quite nasty. If Flagyl caused that reaction you simply mustn't take it. If you're not sure what caused the reaction, that's a more difficult puzzle. I can't tell from your post if you took Flagyl each of the three times this happened, or not. Fortunately there are plenty of meds for pouchitis, and others are unlikely to cause the same reaction (if it's from Flagyl).

If you determine that the reaction is from pouchitis rather than Flagyl, you can do things to make pouchitis less likely. Probiotics (e.g. VSL #3) can help, and you might decide to stay on an antibiotic in the hope that it can prevent this from recurring. It might also be disturbing enough to persuade you to stay on a low carb diet, also in the hope it would reduce or eliminate pouchitis episodes. Good luck!

Thanks Scott. If the reaction is from Flagyl, it's pretty scary that one pill can create this kind of reaction that lasts so long.

Speaking of a low carb diet, I haven't done much research on what a helpful diet for having a j-pouch looks like. Can you point me in the right direction?

What you describe sounds very much like hand and foot syndrome, but it is associated with cancer chemotherapy or sickle cell anemia, not Flagyl.
http://en.wikipedia.org/wiki/C...duced_acral_erythema

The adverse reactions in Flagyl are the regular drug rash (on the trunk) and peripheral neuropathy (numbness and tingling). Still, that does not mean you cannot have an unusual reaction.

Cipro is the other common antibiotic used for pouchitis.

Jan

For most J-pouchers the right diet is whatever you like to eat, and that you tolerate well. For those with a tendency to develop pouchitis, reducing carbohydrates (sometimes drastically) seems to be helpful. Just search for the word "diet" here and you'll turn up hundreds of posts, many of them helpful.

Hi my son had exactly the same reaction in hospital he went bright red to purple with swelling all over the body , got these welk like things over his back , and like a measles rash all over with spiking temperatures, he was diagnosed with ACUTE GENERALISED EXANTHEMALOUS PUSLVIOSIS the end of the rash is where the skin peels , my son's was caused because of allergies to antibiotics, hope this helps

Sorry forgot to mention it started first as a rash on his feet and the top of his arms , then got worse after, if it is the same allergy you to have then you have to stop the offending culprit in my son's case it was antibotiotics, then let the allergy run its course