anyone have clean pouch tests with no inflamation but diagnosed with pouchitis because of symptoms..was amystery to me always..
dr shen explaned his findings as such..when we have jpouch operation a valve to keep bacteria from going back into small intestine removed..in most cases of jpouch not a problem but with some such as mine i am having it leak through because of missing valve..thus the overgrowth of bacteria..
we asked him how many of his jpouch patients so far fall into that group ..he said about 100 he has identified..
now what does that mean well it might explain why i never had symptoms of fever,fatique,joint pains but did have increased frequency,feelings of not emptying and the god awful feeling of having brokem glass coming out when i went to bathroom and burning..and still had a pouch that looked good..
and why it might be ultra important to avoid sugar since it feeds bad bacteria ...which i now take seriously..
and maybe have the probiotics be even more meaningful..but granted he did not talk about probiotics..(i have taken lactobicillus and bifido plus florestor for a few years thinking since i take antibiotics and have had cdiff good insurance in past)
he had me switch from my rotating antiobiotics to belladonna/opium suppositories..he would recommend for pouchitis and overgrowth actually..
gave up my antibiotics three days ago after a week or so on antibiotic and B/O..
will update my progress..
rebe
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