Hello all,
I've been having a hell of a time with my health and (big surprise) the Dr's can't (or won't?) figure out what's wrong.
I've had my pouch since November 2011. Things were great for the first while, then I developed this pain in my lower left pelvic area, it comes and goes with bowel movements. I can't sleep longer than 2 hours at a time woken up with pain and urgency, blood in my stool, etc. My Dr. says the location of the pain coincides with the top end of my pelvic pouch.
Had a pelvic ultrasound - is clear, had a sigmoidoscopy last Friday, Doc says it shows extensive inflammation all around my pouch, took 8 biopsies and put me on a 3 week taper of Flagyll (1000mg/day for 1 week, then 500 then 250) go back to see the surgeon in May.
Now the big problem I'm having is that I've had a migraine headache every single bloody day for almost 4 weeks. I asked my surgeon if the headache is related to the pouchitis and he said.... are you ready for this? "I don't do headaches, go see your GP" seriously? a$$hole. thanks for your (lack of) help! Did I mention this is the second round of antibiotics since the beginning of March?
Migraine: Been to GP 4 times, emergency room twice -- Bloodwork clear, CT scan clear, plethora of meds, only stuff that works to relieve the pain is anti-inflammatories, aka NSAID'S, mm yes no problem, take one pill to clear up one problem and cause another. i.e. NSAIDS cause intestinal bleeding. Emergency room keeps giving me shots of Toradol in the rear end and sending me home. Toradol=NSAID, once the meds wear off migraine is back to square one. Pounding away. Unrelenting.
So anywho, I'm going a little nuts, awful pain in my insides, horrible pain in my head, and having to wait weeks between appointments to see any of my physicians. GP, referral to a neurologist for June (thanks for the expedited service) surgeon, etc. I'm thinking of calling up my GP and getting a referral back to my old GI, he was great, but they took me off the GI list after surgery, because of course, surgery is the "cure" for Ulcerative Colitis! I'M CURED!! (yeah right)
But since the CT, ultrasound and blookwork are all clear, no fever, no abdominal swelling, no weight loss/dehyration (I'm very careful to eat properly and take vitamins and drink electrolyte beverages) none of my Dr's are taking me seriously enough to take any extra time out of their busy patient filled days to Dr. House me a solid diagnoses for my medical woes.
So I'm frustrated, as I'm sure you can tell, and short of stopping eating and drinking for two days to get their attention I'm not sure what exactly to do next.
Any suggestions?
I've been having a hell of a time with my health and (big surprise) the Dr's can't (or won't?) figure out what's wrong.
I've had my pouch since November 2011. Things were great for the first while, then I developed this pain in my lower left pelvic area, it comes and goes with bowel movements. I can't sleep longer than 2 hours at a time woken up with pain and urgency, blood in my stool, etc. My Dr. says the location of the pain coincides with the top end of my pelvic pouch.
Had a pelvic ultrasound - is clear, had a sigmoidoscopy last Friday, Doc says it shows extensive inflammation all around my pouch, took 8 biopsies and put me on a 3 week taper of Flagyll (1000mg/day for 1 week, then 500 then 250) go back to see the surgeon in May.
Now the big problem I'm having is that I've had a migraine headache every single bloody day for almost 4 weeks. I asked my surgeon if the headache is related to the pouchitis and he said.... are you ready for this? "I don't do headaches, go see your GP" seriously? a$$hole. thanks for your (lack of) help! Did I mention this is the second round of antibiotics since the beginning of March?
Migraine: Been to GP 4 times, emergency room twice -- Bloodwork clear, CT scan clear, plethora of meds, only stuff that works to relieve the pain is anti-inflammatories, aka NSAID'S, mm yes no problem, take one pill to clear up one problem and cause another. i.e. NSAIDS cause intestinal bleeding. Emergency room keeps giving me shots of Toradol in the rear end and sending me home. Toradol=NSAID, once the meds wear off migraine is back to square one. Pounding away. Unrelenting.
So anywho, I'm going a little nuts, awful pain in my insides, horrible pain in my head, and having to wait weeks between appointments to see any of my physicians. GP, referral to a neurologist for June (thanks for the expedited service) surgeon, etc. I'm thinking of calling up my GP and getting a referral back to my old GI, he was great, but they took me off the GI list after surgery, because of course, surgery is the "cure" for Ulcerative Colitis! I'M CURED!! (yeah right)
But since the CT, ultrasound and blookwork are all clear, no fever, no abdominal swelling, no weight loss/dehyration (I'm very careful to eat properly and take vitamins and drink electrolyte beverages) none of my Dr's are taking me seriously enough to take any extra time out of their busy patient filled days to Dr. House me a solid diagnoses for my medical woes.
So I'm frustrated, as I'm sure you can tell, and short of stopping eating and drinking for two days to get their attention I'm not sure what exactly to do next.
Any suggestions?
