Pouchitis after returning to ileostomy

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Very-Unique

After 22 painful years with my W Pouch I decided to go back to ileostomy 3 years ago.
The pouch was left in situ in case I wanted to go back to the W pouch.
I don’t.
However the reason I returned to my ileostomy was because I could no longer cope with pouchitis, but I continue to have it.
I’m in hospital tonight from symptoms of nausea, fatigue, bloody mucus and lots of it, and of course pain and cramps.
Damned if I kept my W pouch, and damned if I didn’t.

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Scott FMember

I’m sorry the ileostomy hasn’t solved the problem. In some cases pouchitis becomes worse when the stool is diverted (this is called diversion pouchitis). Do you have a surgeon qualified to remove the pouch? You might get good results with budesonide enemas, but perhaps you’ve already tried these.

12/29/2310:55 AM

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