Pouchitis after returning to ileostomy

Very-UniqueMember

After 22 painful years with my W Pouch I decided to go back to ileostomy 3 years ago.
The pouch was left in situ in case I wanted to go back to the W pouch.
I don’t.
However the reason I returned to my ileostomy was because I could no longer cope with pouchitis, but I continue to have it.
I’m in hospital tonight from symptoms of nausea, fatigue, bloody mucus and lots of it, and of course pain and cramps.
Damned if I kept my W pouch, and damned if I didn’t.

12/29/238:44 AM

❤️ 0

Original Post

Scott FMember

I’m sorry the ileostomy hasn’t solved the problem. In some cases pouchitis becomes worse when the stool is diverted (this is called diversion pouchitis). Do you have a surgeon qualified to remove the pouch? You might get good results with budesonide enemas, but perhaps you’ve already tried these.

12/29/2310:55 AM

❤️ 0

Add Reply

<ul id="{%=id%}ButtonGroup" class="button-group h-popup-buttons even-button-group even-1">
    <li id="{%=id%}Okay_buttonContainer"><a id="{%=id%}Okay" href="javascript:void(0);" class="button success no-margin-bottom h-alert-modal-ok-button" role="button">OK</a><script type="text/javascript">
        (function() {
            function {%=id%}Okay_click(event, data) {
            {%=id%}Popup.hide();
        }
        
                $('#{%=id%}Okay').on('click', {%=id%}Okay_click);
        })();
    </script></li></ul><a href="javascript:void(0);" class="close-reveal-modal" aria-label="Close Modal">&#215;</a><div class="last-modal-focus focus-utility-element" tabindex="0"></div>
</div>
<script type="text/javascript">
        (function() {
            {%=id%}Popup = new SS.Popup.ModalPopup('{%=id%}');
        })();
    </script>

Skip to main content

Add Reply

Membership Required

Remove From Your Block List

Manage Follow Preferences

Block

Please wait...