I had my surgury almost 30 years ago. i have Pouchitis all the time. I take Amoxicillion daily, it used to work, but now it seems the only thing is Cipro! It scares me because of the tendon issue. Does anyone else deal with this?
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I’ve been on Cipro daily since 2008. My tendons are fine, and my pouchitis is well controlled. I carefully experimented to find the lowest effective dose, to minimize the risk. I did have to add Flagyl about 6 years ago when Cipro alone stopped working adequately for me.
A reasonable alternative would be to try one of the biologic medications. That’s certainly what I’ll do if Cipro+Flagyl stops working. Some people (or their doctors) prefer long term biologics to long term antibiotics, and that’s a fine choice, too. Living with out of control pouchitis would not be acceptable to me.