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Hope everyone is doing well. I was wondering what pouchitis symptoms are like. Isn't it like a flare up with upset stomach and diarrhea? I typed in pouchitis symptoms on you tube and nothing really came up. When I went to my surgeon a few weeks back I asked if I had it or a flare up because I had diarrhea pretty bad because I had to take a steroid for my eye believe it or not and it wrecked me pretty good as I don't tolerate that or meds in general well. He said no. But I'm still not clear on symptoms as far as the pouchitis. Been averaging 6 times a day going to the bathroom, but past few days it went up to 8-9 times but is clearing up like it does pretty quickly and I get back down to 6 times a day. Been under quite a bit of stress last two weeks. Thanks

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My pouchitis symptoms are exactly what CT lists. People report other symptoms, too, so it’s sometimes a tricky diagnosis. I’d avoid using the simple term “flare-up,” because it means so many different things to different people, and can keep us from getting a proper diagnosis. You can only have a flare-up of an underlying condition (e.g. UC, pouchitis, cuffitis, etc.). Many of us got used to the term as a way to describe the waxing and waning symptoms of IBD, but under those circumstances it meant a flare-up *of UC* (for example). Without a colon you can’t have a simple flare-up of UC. Heck, while I’m at it, “diarrhea” is a confusing term for us, too, since our stools are *supposed* to be a bit loose. My purpose isn’t to police anyone’s language for its own sake, but to help us communicate in a way that enables understanding.

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