Pouch to Ileo back to Pouch

RE5Member

Does anyone on this site know of anyone that went from a pouch to an ileo back to a pouch? Just recently went back to the bag and man ..... I think it's finally hitting me hard after a major blowout while out to dinner with friends. I still have my pouch intact and I know going back to the pouch is a possibility but, every medicine failed me and I literally tried everything. The first two years with my pouch were wonderful and I think I'm just praying there's someone out there that was or is in a similar situation that has some ray of hope to give me. Don't get me wrong, I'm very thankful for not taking any medicine anymore and for having virtually 0 pain but, I hate everything that comes with having an ileo.

7/28/162:26 AM

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Scott FMember

Rez, it kind of shuts down ideas when you write that you literally tried everything. You didn't actually try everything, of course, but I'm sure it seemed like it. In any case, more important than what you tried (though that would help), did you ever find out what was wrong? Maybe you needed a smarter GI.

7/28/169:53 AM

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RE5Member

Biggest problem was I couldn't ever get the Pouchitis under control. I think I went years with the symptoms and the only time it temporarily subsided was with Cipro / Flagyl.

7/28/1610:12 AM

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BillVMember

If I were in your position, I would get a comprehensive examination by doctors who are well-experienced in dealing with j pouch problems. Hopefully, they can find the cause of your problem and offer a solution. The Cleveland Clinic is very well known for this. Give your j pouch another chance to work out well before throwing in the towel. If you are not able to obtain the quality of life you desire with your j pouch, you could consider the k pouch or BCIR that do not require an external bag. You are not at that point now. Good luck!

Bill

7/28/1611:28 AM

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