Pouch removal - I've done it !!!!

Yay! How awesome for you.  I hope all continues to go well.  My son will be having his removed in a couple of months.  Looking forward to him being on the the other side and getting on with his life.

Where did you have it done?

It's not that bad as everyone thinks on this side. 

Hindsight is ... well. You know. 

A dreaded situation ends up being where I needed to be all along. 

All the problems leave with the pouch. 

Mine did anyways.

Richard.

Heal well. Heal fast! 

Did you get the end ileostomy back? How do you feel about having it?

Hi Saff, you are really brave that would have been a difficult decision. Please keep me posted on whether the joint pain comes back or not, I'm so curious about the connection between j-pouch and arthritis.

Hey Momma, in Australia with Prof. Solomon. Yes thanks Richard - I am hoping to emulate your journey!! Hi Andrina, the main thing for me is being well, and active and medication free (hopefully). So if that's what its going to take I'm good with that. Much rather that than constant issues and challenges. Drone 3 It was a very difficult decision that was years in the making  - I am so relieved to be on this side of it. Recovery is going well , best of the bunch for me so far. 

Hi Saff, I'm in Melbourne if you ever want to hang out and share war stories let me know.

Sounds like your doing well already. 

It took me a month after getting out of the hospital to come to terms with it and accept it. Once I did. My life changed 100% for the better. No regrets.

Richard 

Oh I’m already feeling good about it and haven’t had any serious pain relief for a couple of days - pretty good 11 days out ! 

I was in the hospital 11days after. Only because my surgeon wanted to keep an eye on me. Lol.  Not because I had problems.  She knew me well from prior surgeries. 

I don't follow instructions well. Hahaha. After 11 days they let me go. 

I was fine by then. Now that your out its just time and patience.  It got better everyday after I got out.  Not like previous surgeries   I got worse. 

Having the removal and ileo was a breeze compared to the previous 3 surgeries.  That's when I knew I did the right thing and knew I was gonna be ok.

My best to you! 

Richard  

Saff, thank you for sharing. I actually logged on today to the site for the first time in a while hoping I could find a post regarding pouch removal. For some reason I didn't think I would and have been feeling like I'm the only in the pouch world considering having it removed. I feel much better now though knowing it does happen to others where a point is reached that removal is necessary. I had my original surgery four years ago and have had nothing but constant flares. Last hope has been xeljanz, which isn't working. I'm happy to hear you're well and that people do have the reversal done. I wish you continuous success in recovery. 

Hi Mike, oh  am glad to provide some comfort for you then! There are actually quite a few people here that have had it removed- it’s just not so obvious to find as we don’t have a separate topic for removal - it would be easier if we did. But if you use the search bar at the top of the page and search ‘pouch removal’ you will find plenty of other people experiences also.