posted October 30, 2014 08:32 PM
I've watched from a distance for years but wanted to finally get a bit more involved. I was diagnosed with UC 17 years ago. The cocktail of meds helped a bit but I worried about the long term effects, especially the Prednisone. Opted for a J-pouch 14 years ago and have battled pouchitis ever since. Scarey to think of the mounds of antibiotics that I've run through my system and the effect it may have later in life. Asked my surgeon in Des Moines why we keep treating the symptoms and don't target the cause? I was promptly referred to Mayo. Extensive testing showed Crohns and pouch dysfunction that was recently changed to pouch failure. I'm meeting with my Mayo GI doc and a surgeon next week to discuss pouch removal. Anyone have insight into the pouch removal process, results or complications?
I've watched from a distance for years but wanted to finally get a bit more involved. I was diagnosed with UC 17 years ago. The cocktail of meds helped a bit but I worried about the long term effects, especially the Prednisone. Opted for a J-pouch 14 years ago and have battled pouchitis ever since. Scarey to think of the mounds of antibiotics that I've run through my system and the effect it may have later in life. Asked my surgeon in Des Moines why we keep treating the symptoms and don't target the cause? I was promptly referred to Mayo. Extensive testing showed Crohns and pouch dysfunction that was recently changed to pouch failure. I'm meeting with my Mayo GI doc and a surgeon next week to discuss pouch removal. Anyone have insight into the pouch removal process, results or complications?