Hi, I'm new here. Dx'd w/UC one month after I had my daughter, 12/2001. On steroids x 1 year w/no remission. Had initial surgery 1/2003 w/takedown in 3/2003. Struggled w/pouchitis quite a bit at first but have done pretty well the past few years. Recently noticed I was feeling more "protuberant" in my RLQ, extending almost into RUQ. For those who have been pregnant, felt like gravid (pregnant) uterus lyng sideways. Never have pain/cramping/etc there, even when I have had pouchitis. Periods have worsened pain-wise over past year. My gyn said my uterus is moved to the left, which is fine, but why? So I had an US today. The poor sonographer kept asking me, post-void, if I had really voided, b/c she could see what she called a "fluid pouch" (the J-pouch), with my uterus compressed btwn it and my bladder, and my bladder hadn't completely emptied, even though I thought it had, when I went to the bathroom. Obviously, displaced abd organs are also compressing/obstructing urine outflow. So - as a nurse - my immediate questions are: 1) wondering if I will need some type of revision of pouch? or 2) possible mesh for reposition of bowel back behind uterus?
If anyone has had any experience like this, please post!
I'm thinking I won't hear from my doc till next week b/c of the holiday.
The thought of surgery of any kind is slightly terrifying b/c I have had so much trouble w/pain control in the past.
Any help is appreciated!
Thanks!
Brenda
