Hi everyone!
I officially had my Proctocolectomy w/jpouch on Dec. 17th with a 7 day hospital stay---and am due to have my takedown on Feb. 22nd.
I had an AMAZING surgeon and he's been having me call one of the nurses on his team everyday---literally EVERYDAY---at 10 am in the morning to tell him my output the day before, concerns, etc. So that's great that they're so on top of things.
But I'm 4 1/2 weeks out and I'm STILL exhausted! My flare before my surgery was pretty much 7 months long---but I'm having a hard time coping with being immobile. It makes me feel pathetic.
During my first checkup with my ostomy nurse---she told me to start taking the Imodium they gave me two times a day---So I took one the minute I got home. Within the hour I had so much more energy! And I was able to walk the 6 blocks to the grocery store, shop, AND come back--when I could BARELY walk one block before! So I continued with it. That was about a week ago.
The past 4 days though started getting difficult. My stomach began to swell and felt really sore. I haven't felt the need to take any of the pain killers they gave me until then. The same night I broke out into a low fever so I took some Tylenol and that helped it go away--but that concerned me. And then the past couple days I started feeling a little exhausted again---and I can't sleep for the life of myself!
My nurse that I call everyday wanted me to be very careful with the Imodium---he doesn't want my output to be too low and he said it could make my tummy sore. Ah-ha! So today was the first day that I stopped taking it. And guess what---full blown exhaustion again! I also broke out into another low fever tonight! And not sleeping either!
I just want to make progress. Maybe this is just gonna take me longer to heal from. . I know I'm being whiny---but I'm having a hard time.
Also---I get soooo hungry sooooo fast! I eat a lot of protein---I don't eat grains or patatoes---so my carbs I'm still trying to figure out since now there's NEW things on my list I can't eat for blockages.
Has anyone gone through something similar?
Any advice would be greatly appreciated! Thank you!