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Dear all you wonderfull, helpful people,

My doctor tells me, that I have something very simular to colitis going on in my pouch. Have you heard about this before?

I am currently having a dilation every 3 months, sometimes more often, as my scartissue keeps on growing and blocking the passage. The past 3 times there has been some sort of infection, which I now suspects is chronic. The doctor keeps on telling me, that if I feel fine, he won't do anything about it. What do you guys think about that?

On top of it all they have found a kidneystone, I can see a few people have written about this before. Do you know why we get them, and if we can stop them with changes in the diet? That being said, I should also mention that I am very low on iron - 8 (is that what you call in in English?).
Any advice is welcome.
Thank you all. You are true lifesavers.
Rikke
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I seem to be experiencing the same issue you have but for longer. I require dilations every six months as I have cuffitis and pouchitis in the distal pouch. I take cipro continually as without it I always have burning and discomfort in my anal area that is unbearable. This has also caused me fissures at times.

Have you had your pouch looked at and biopsied? That would tell them if you have pouchitis. Many of us alo have low iron (me being on of them too). I am taking supplements now. Also if you do have pouchitis or cuffitis going on, they can provide treatments that should help with the inflammation.
Yes..exactly where I have my issues...at the pouch connection and below the remaining anal canal. Cipro does help my symptoms as well ass rectal canasa. Just a thought.

Wonder of when surgeons do this operation, they can pull back a bit more of the iliem that is immediately connected to the colon to avoid these issues in the lower pouch where connected, but the remaining cuff may always present issues for some of us.

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